Lupus plus Rosacea???
I am currently being monitored for either DILE drug-induced lupus or onset SLE, however the Rheums team at my local hospital are leaning towards DILE from acne medication isotretinoin, which was shortly afterward stopping that then exasberated by a adverse reaction to minocycline antibiotic.
The Rheum team (2 people) and Derm team (2 people) can't figure out whether I have both Lupus or Rosacea, or just Lupus. My butterfly rash is very much in a butterfly shape, though not raised, and is very very sun sensitive, and burns like anything from sun exposure for hours and hours. However, I also get flushed especially from traditional Rosacea triggers like exercise, stress, hot temperature foods, alcohol, hot showers etc the redness isn't on the sides of my nose or where my nose touches my cheeks.
Now- the Plaquenil I have been on for 3 months now since testing postive ANA 1:640 speckled, and very raised ESR. It has helped greatley in almost every way such as hand symptoms/chillblains/red nail beds/swelling, less fatigue, slightly less base-redness in central face area, improved one of my toenails etc But i still get horrid flushing (particulary the nose area) when exposed to warm temps or traditional Rosacea triggers.
Can anyone shed some light? i.e. if you have Lupus is flushing never really an issue? if it isn't i wonder if i have both Lupus and Rosacea?? It is very confusing really...
I am very strict about sun protection lately though so won't be getting any more sun rashes/burning. I still get the flushing though no matter what.
Thanks in advance for anyone's help or thoughts...
Last edited by Shantelle; 10-14-2010 at 04:43 PM.
Lupus & Rosacea. Cutaneous symptoms, photosensitivity, ANA 1:640+. Currently using: Since end April '10 50mg Doxycycline / Since 17 July '10 1x Plaquenil 200mg day.