I can definitely relate! I have been having horrible migraine or (lupus headaches) for 14 months now. They have tried several different prophylactic meds to prevent them. Currently on Depakote and Gabapentin to prevent them. Tordol, Phenergan, and Vicodin 10 to stop them. But I have found just in the last week by my primary increasing my prednisone to 40mg that my migraines are much better. However every time they try to taper down again they get really bad. They are now talking about another mri and a possible spinal tap. So I know how you feel. You are soooo not alone. I really hope you get some relief soon.
Dx. SLE June 2009
♪ Jen ♪