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Thread: Hello to everyone.

  1. #11
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    Hi Terri. It,s amazing how doctors are so unaware of lupus. I was told i had a skin infection then a fungal infection. I did suggest it might be lupus, but they don,t listen. It must be tough having it from a young age. I know what you mean about neglect. My late sister also had lupus. She spent years going to the doctors with various symtoms. By the time they found out she had lupus it was too late.

  2. #12
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    Quote Originally Posted by evelynn View Post
    Hi Terri. It,s amazing how doctors are so unaware of lupus. I was told i had a skin infection then a fungal infection. I did suggest it might be lupus, but they don,t listen. It must be tough having it from a young age. I know what you mean about neglect. My late sister also had lupus. She spent years going to the doctors with various symtoms. By the time they found out she had lupus it was too late.
    Hi Lyn,
    First off mate realy sorry to hear about your sister.

    Well since a kid i always suffered with chilblains which the Doctor's said it was but 3yrs ago when we moved here i came out in a blister rash, then it spread to my body and looked like ringworm and the doctor said i had that, no one was allowed in the house and the doctor would'nt prescribe no more cream after 2wks, well my husband went mad and then i was sent to a skin specialist and straight away it was ezcema i'm being treated for that and last year when i saw the specialist i showed him my hands and nose plus mouth and feet as i thought the chilblains was getting worse but i was told i'd got Raynauds Disease, it's a total nightmare to live with.
    Lyn i would realy push it further with a skin specialist, i realy would being as your sister had it also.

    The first affects i had of a child was black eyes underneath and my body temprature freezing cold, my mom took me to be tested for anaemia and nothing was wrong and it carried on till i was 14yrs old then all signs started, a right boat load of ailments and i had to laugh when i read the letter to my GP off the specialist i was an interesting lady, well they've pulled me in to be seen tomorrow as i'm having flare ups on my kidneys and they're really aching and hopefully i get my other 11 test results they've ran on me.

    Takecare and all the very best with getting help.
    Love Terri x

  3. #13
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    Hi Terri. I was also told i had ringworm at one stage. At the moment i feel great. I,m on reducing amounts of Prednisolone so i know my symptoms will return. Up untill this year, lupus had only affected my joints. When it attacked my skin it took my by surprise. But then lupus is a very unpredictable disease. I do hope you get on okay with your test results. love Lyn.x

  4. #14
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    Hi Alley Cat. Thanks for the welcome. Must be a lot worse trying to stay out the sun where you are than where i am. I would imagine Texas is really sunny. Although it,s pretty sunny here at the moment, and cold. I,ve plastered my face and hands in suncream.

  5. #15
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    Welcome, Lyn! You've found a fabulous forum with a lot of experience/knowledge (collectively).

    Please come back often.

  6. #16
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    Quote Originally Posted by evelynn View Post
    Hi Terri. I was also told i had ringworm at one stage. At the moment i feel great. I,m on reducing amounts of Prednisolone so i know my symptoms will return. Up untill this year, lupus had only affected my joints. When it attacked my skin it took my by surprise. But then lupus is a very unpredictable disease. I do hope you get on okay with your test results. love Lyn.x
    Hi Lyn,

    I went to the hospital mate and was kept in the day unit from 11 till 3-30pm and another 12 blood tests and 2 x-rays which i had to sign for, i shall put it up tomorrow with how i got on, it's just been mad this end mate having stuff done in the home then the un-repacking it's stressed me out totally.
    Well where you skin is concerned i hope it holds off as much as it can for you and i do hope it does, mine fingers today have been bleeding and the cuts are developing on my fingers and i wow go into the pain.

    Takecare mate & all my love Terri xxx

  7. #17
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    Hi Kim. I have been using an umbrella. I,m hoping my neighbours don,t think im, a nutter. Love Lyn.

  8. #18
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    Hi Lyn,
    Welcome to WHL. You've found the right place for understanding.
    You would think that the docs would have been suspecting Lupus right away after your sister having it. Sometimes I think that they just don't think logically!
    Hugs,
    Marla

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    Hi Lyn my name is Lesley i have Lupus aswell and am new to this site. i also live in the uk, woluld you like to hook up and chat

  10. #20
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    Quote Originally Posted by lesley View Post
    Hi Lyn my name is Lesley i have Lupus aswell and am new to this site. i also live in the uk, woluld you like to hook up and chat
    Hi Lesley, welcome to the WHL and i'm from the UK also, this condition is a total nightmare but best of luck with it.

    Terri x

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