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    Default Hello from Lisa

    I have symptoms that my counselor and gyno both believe are Lupus. My rheumatologist will not make a diagnosis because I do not test on blood work. I wanted to join the forum to see if that is common --- not to have blood work to help in diagnosis. My rheumatologist told me today he didn't need to see me again. I feel lost!

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    Good Morning, Lisa. Welcome to WHL! What you are going through is so very common! I am actually in the same boat as you are. Many times we suffer for years before we get a diagnosis. I was diagnosed with SCLE Lupus but even though I have sooooo many symptoms of SLE Lupus my bloodwork doesn't give the proof they are looking for.

    Please make yourself at home and read some of the old threads. I learned so much when I first came here and it was such a relief to find people that felt like I do! I am sure you will. This is a wonderful group of people and we are glad to have you with us!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Default THX Tgal

    I was considering going to my aunt's house in Magnolia, near Houston, TX. Is there one doctor I should try to get an appointment with? I thank you for you encouragement.

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    Funny you mention that. I actually went to a doctor over there for awhile. Great doctor but the one thing that I have learned from all of this is that you have to go to the best if you are ever going to have a shot at getting an answer. I now make the drive to The Medical Center in downtown Houston. Although I still have no answer I now have a team of people working on me. Each one can see the records from the other and they don't mess around. The first neuro appointment and rhumey appointment each lasted over an hour! Before that I was lucky to get 15 minutes from a doc.

    I go to the UT Physicians building and Hermann Hospital. Fee free to message me and I will be glad to give you my doctors names!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

    ~Winston Churchill~







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    Lisa
    I'd say keep going until you get some answers. It does take a while for doctors to diagnose Lupus since the symptoms varries from person to person. I don't know about you but an answer is something you can work with and learn what to do. When you are in limbo you don't know where to turn. Good luck finding a good doctor. I think they are few and far between. Welcome to the forum. People here sure do understand where you are because they have walked down the same path. Hope you get a good one and answers soon. Billie

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    Hi Lisa, all I can say is, don't give up!!

    When my fingers started to swell, a specialist thought it was scarlet fever.
    He tested me for it, together with ANA.
    Results showed negative for scarlet fever but positive for ANA (not borderline, it is "elevated").
    My others joints were starting to ache big time and yes, he totally ignored my ANA + result and sent me home with MOBIC!!

    I had to do a lot of research and internet, eventually, I found and matched my symptoms to lupus.
    We are lucky to have internet these days, so, Lisa, do more research and see if you have other lupus symptoms that you may have overlooked.

    Knowledge is POWER

    Good Luck my dear!

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