I know how you feel, your not alone in this. I hybernated last Summer because I was always overheated and flushed and sun sensitive. At that time I didn't even know i'd soon be heading down the pathway of getting tested and monitored for onset SLE or DILE. It is going from Winter to Spring in New Zealand and it's slowely getting hotter. I can't go anywhere without a hat, and I sometimes feel annoyed that I can't sit in the sun and have coffee, or go for long hikes like my sister and brother did today. Sometimes even 4 mins hanging up washing outside on the washing line at 9am sets off a glorious sun rash grrrr. I'd love to do so much things, but just get far too overheated and flushed and 'inflammed' feeling, and almost die of exhaustion with almost any level of heat or sunshine. I'm hoping Plaquenil will help with things over time. Some things I read in D J Wallaces 'The Lupus Book' keep me hopeful about anti-malarial use and it's help (eventually) with skin symptoms and protecting the skin a little more from UV damage. I wonder if any others can shed some further like on this??? Have you started the plaquenil Islablue???
Lupus & Rosacea. Cutaneous symptoms, photosensitivity, ANA 1:640+. Currently using: Since end April '10 50mg Doxycycline / Since 17 July '10 1x Plaquenil 200mg day.