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Thread: they said I am nuts

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    Default they said I am nuts

    In 09 my Ana was 1.140 I complained of achey knees, fatigue. In 2010 (11 months) later my Ana was 1.640 both test said Positive speckeld. I am at times uneplainably tired, to a point it worries my sister who is used to me going and going. I am 39 I have a rash on my nech should and lip. Today I went to dr. and he gave me some cream and said I was nuts. Often I feel pulling in my chest and get this hot burning felling in my toes. THe Rheumy said I don't have lupus and he is clueless why I am tired or why my knees hurt. HE ran A SSA SBA that said negative. BUt I am not comfortable with their diagnosis. They make me feel as if I am a chronic complainer!

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    Sorry to hear you don't feel well. If you know something is not right..persue,persue,persue.You are not "nuts".Maybe THEY are incompetent..it makes my blood boil when I hear this. Just because they can't diagnose you, doesn't mean something is not wrong. If you can, look for another MD, get your blood work results to keep. Do you have a large hospital near you.They might have a decent specialist for you?
    Andrea

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    Sadly the story you are telling is all too common. I agree. You know your body and yourself. If one doctor won't listen then find one that will!
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

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    Did they run an anti-ds-dna (I think that's what it's called) test? My ANA was positive as well as the dna test, all others were negative. I agree w/the others, find a new doctor who listens to you.
    Lauren

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    Hi, I know EXACTLY how you feel. I have seen doctor after doctor only to find that they have no answers for me except wrong ones. It took me never giving up and KNOWING there was something not right with me to find the answer. I never thought it was Lupus until I went to Mayo Clinic in Rochester, MN. It was 14hrs from my home and my dad and I flew there. I saved for months just to go and they offered me real answers. It was worth it. DON'T GIVE UP if you know something is wrong with you. It took me YEARS to get diagnosed and none of my tests are positive yet. I'm borderline positive for Lupus according to my blood, but according to the best doctors in the country that doesn't matter because of how long it takes for the blood tests to show positive. It's history and symptomology that matters. The one thing that helped me was I started a journal and I took pictures. I had pictures from 07 through 2010 of all of the rashes, all of the color changes in my skin, swelling, everything. Those played a HUGE part in my diagnosis. I left at least 7 or 8 docs offices in tears while they didn't care. I would cry and worry and cry some more when they would call me crazy or claim I was just trying to get pain meds. I knew I was sick, and you do too. So hang in there and don't give up. Be your own advocate. We are here for you! (((hugs)))
    Last edited by Islablue; 09-16-2010 at 08:35 PM. Reason: brain fog!

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    HA, the only people who are nuts are the doctor's you are seeing. There are so many of us out here with these diseases, so there is NO way you are nut's, they just don't know what they are doing and are "trying" to act professional. Keep on fighting and if you need to change doctor's a handful of times to get the care you need, then do it. We're all here to back you, you're definitely not nuts, or this site would be named WeHaveIssues instead of Lupus.

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    LOL@ we have issues! Perfectly stated
    Mari

    Success is not final, failure is not fatal: it is the courage to continue that counts.

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    I think some of the incompetent docs should have the "we have issues" web site...hahahahahah
    Andrea

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    Maybe we should put an ad in the medical journals. Doctors educate yourselves. Patients have feeling, they come to you for answers. They do not need to be told they need to see psychitrists (sp?)..... I can't spell. Never could.

    I have been told repeatedly for the last 40 years that I needed a shrink. Well 40 years later they decided that I had Lupus.

    Go figure

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    I cannot add anything more to the advice and responses that you have been given. I agree totally with the assessment that we should put articles in the medical journals to remind doctors of their hypocratic oath and, supposedly, their reasons for getting into the medical field. I think they forget that they are humans (not Gods), just like we are!!
    At any rate...welcome to our family where, as you've seen, we understand and we care.

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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