Just found this forum, glad it's here.
I have SLE and in need of support. Anyone experience mouth ulcers? It took six years to finally diagnose my lupus but can't seem to get new physician to really do anything about my flare-ups other than Prednisone. I cannot obtain insurance through any agency and cannot afford costly tests, medications or specialists. In the past I have seen every kind of doctor available and had every test imaginable. My primary flare-ups tend to effect the brain, mouth ulcers and now uncontrollable high blood pressure (160/120). I had discoid lupus in the past but none for the past 5 years.
I do have a lot of heart problems because of the lupus such as mitral valve prolapse and now aortic valve prolapse. I have major inflammation in the lymph nodes, with the right lymph nodes in my neck being removed. My longest flare-up was for six months.
It's bizarre that no one in my family for nine generations has had lupus. No one in my family for eight generations had melanoma (which I also had removed).
I have also been diagnosed with narcolepsy, fibromyalgia, GERD, asthma and my doctor is currently investigating my new diagnosis of early onset of Alzheimer's disease. I just figure all these diagnosis are connected to the lupus. Anyone else with similar illnesses?
Glad to be a member, will help anyone if I can. Thanks