Linda, a friend of mine's mum has lupus amongst her other autoimmune issues and she said that there are some support groups that she has met with, I think they were through Royal Perth Hospital, but dont quote me on that...brain fog day
Diagnosed with SLE and Antiphospholipid Syndrom - June 2010
Hey guys this actually sounds awesome. I know two other from Perth on a FB group that I thinknwould love to come. I think I could really use this at the moment. Could we set a date and time? And if Linda isn't feeling too good the first time I'm sure we'd love to make it a more regular meet? Thanks. Any times or dates soon?
i would like to catch up as well if anyone still comes on this site,
i have lupus now for 16 years and also sjogrens, coeliac, and arthritis
im in perth wa
if you like to message me please feel free,
I am having a bad flare day and browsing thru the net,
I hope you are feeling better,
Hey ok I think one of us needs to come up with a date time and place haha. Where a bouts in Perth are you guys, I am Bayswater or Woodvale? Thanks
Debstar, my sister has started planning a meet up on the Lauries Lounge Forum section, the thread is titled 'For all the Sandgropers Keen to Meet Up' or something like that. Lets plan it and meet Also the Lupus Group of WA has a meeting come up, look it up on the website and come along
Last edited by Desleywr; 09-15-2011 at 02:54 PM.
For every dark cloud there is a silver lining!
Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;
How is your holiday going?
I have just updated the 'Sandgroper' post with date and time (need to decide on a place)
See you soon.