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Thread: Perth - Western Australia

  1. #11
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    Quote Originally Posted by steve.bryce View Post
    tgal, i have a spare bed for you.
    but you have to pay for the flight.

    it would be a pleasure to accomadate you. lol
    LOL Thanks Steve but if I am just coming for coffee ohh sorry, tea, wouldn't I have to fly back the same day?
    Mari

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  3. #12
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    Quote Originally Posted by tgal View Post
    LOL Thanks Steve but if I am just coming for coffee ohh sorry, tea, wouldn't I have to fly back the same day?

    if only ................

  4. #13
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    Linda, a friend of mine's mum has lupus amongst her other autoimmune issues and she said that there are some support groups that she has met with, I think they were through Royal Perth Hospital, but dont quote me on that...brain fog day
    Diagnosed with SLE and Antiphospholipid Syndrom - June 2010

  5. #14
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    Hey guys this actually sounds awesome. I know two other from Perth on a FB group that I thinknwould love to come. I think I could really use this at the moment. Could we set a date and time? And if Linda isn't feeling too good the first time I'm sure we'd love to make it a more regular meet? Thanks. Any times or dates soon?

  6. #15
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    Thanks driver

  7. #16
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    hi
    i would like to catch up as well if anyone still comes on this site,
    i have lupus now for 16 years and also sjogrens, coeliac, and arthritis
    im in perth wa
    if you like to message me please feel free,
    I am having a bad flare day and browsing thru the net,
    I hope you are feeling better,
    Kind regards
    Elly

  8. #17
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    Hey ok I think one of us needs to come up with a date time and place haha. Where a bouts in Perth are you guys, I am Bayswater or Woodvale? Thanks

  9. #18
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    Guys

    Debstar, my sister has started planning a meet up on the Lauries Lounge Forum section, the thread is titled 'For all the Sandgropers Keen to Meet Up' or something like that. Lets plan it and meet Also the Lupus Group of WA has a meeting come up, look it up on the website and come along

  10. #19
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    Cool Coffee 29th Sept Perth

    Quote Originally Posted by YollyDolly View Post
    Guys

    Debstar, my sister has started planning a meet up on the Lauries Lounge Forum section, the thread is titled 'For all the Sandgropers Keen to Meet Up' or something like that. Lets plan it and meet Also the Lupus Group of WA has a meeting come up, look it up on the website and come along
    Some of us have been talking about a coffee on the 29th September morning no time set yet but what about 9.30am at Subiaco?
    Last edited by Desleywr; 09-15-2011 at 02:54 PM.
    Desley
    For every dark cloud there is a silver lining!
    Diagnosed: Lupus; mesenteric panniculitis; fat nacrosis;

  11. #20
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    Hi Desley,

    How is your holiday going?

    I have just updated the 'Sandgroper' post with date and time (need to decide on a place)

    See you soon.

    Debs

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