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Thread: Newly Diagnosed

  1. #1
    Join Date
    May 2010
    Thanked 0 Times in 0 Posts

    Default Newly Diagnosed

    I was just diagnosed with Lupus last week and I still don't know a whole lot about it. I am only 22 years old and until last year I thought I was pretty healthy. But, I started having trouble getting up and around each day. I became so exhausted and tired it started to interfere with my life. I also get a light butterfly rash over my cheeks and nose but I don't get it every day. Some days itís really prominent and others not so much so I wasn't sure if it was Lupus or just my skin tone. I finally convinced my doctor do blood work and MRI (bad back pain) even though she didn't want to because I am so young. However, the MRI revealed that I have spondylolisthesis, spinal stenosis, and degenerative disk disease ???. The blood work revealed elevated ANA. So Doc sent me to specialist for my back and kind of ignored the ANA. Three months later I went back and requested more blood work bc I was becoming depressed bc of everything. She agreed and again another elevated ANA. This time she sent me to a rheumatologist where he had more blood work done. I just got the results a few days ago. He handed me papers on SLE and Plaquenil and said my DsDNA was a 22 so he believes I have Lupus. And thatís pretty much where I am now.

  2. #2
    Join Date
    Feb 2008
    Thanked 1,110 Times in 630 Posts


    Hi Lexi's Mommy,

    I've been living with Systemic Lupus since 2004, though it's believed I had SLE for many years before my diagnosis. I'm 42 years old now. I just wanted to welcome you, and let you know that you can live a full, fulfilling life with Lupus. There are adjustments to be made, and there will be some tough, and maybe scary times, but Lupus can be controlled and you can move on with your life despite it. You probably feel a bit overwhelmed, and have many questions. We've got some pretty good listeners here, so if you need to talk, we're here.


  3. #3
    Join Date
    Nov 2001
    Victorville, California
    Blog Entries
    Thanked 1,128 Times in 743 Posts


    Hi Lexi'sMommy;
    Welcome to our family. I am so sorry to hear that you have been diagnosed with SLE. However, as Rob said, it is very possible to live a full life with this disease. It is important that you take your medications, take necessary precautions (like avoiding the sun, not over-exerting yourself, getting plenty of rest), eat healthy, exercise regularly, and make sure that you get recuperative rest.
    Everyone here is very happy to help you in any way that we can. We are here to make sure that you know that you are not alone and that we understand.

    Peace and Blessings
    Look For The Good and Praise It!

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