Thank you so much for sharing your inspiring story with us. You are very lucky that your Lupus continued into remission even while you were self tapering your meds. I am so happy to hear that your symptoms are minimal even today! That is wonderful.
You are absolutely right when you said that we must listen to our bodies, strive to live a healthy life,keep a positive attitude, and not to become a victim. One of the things that we stress here at WHL is for everyone to educate themselves about this disease, its treatments, its medications, and how it affects us individually. In this way, we can become competent advocates for our own health care.
Unfortunately, there are many of us who are not able to self taper our medications. Often, when we try, out symptoms return or they worsen. I always advise everyone that, if they are thinking about changing their regimen, that they do so under their doctor's guidance because self tapering on some of the medications can actually be very harmful and even fatal. I am so happy that you did not have any of these issues, but I have to continue to advise against it for other members.
I am so happy that you found us and that you decided to join us. I look forward to hearing more from you as your post was very uplifting and hopeful.
Peace and Blessings
Look For The Good and Praise It!