Hi, I'm Candis. I was dx'd with lupus at 30 & am now 53. My first symptom (extreme photosensitivity) occurred when I was only 17 & many inexplicable near-death occurrences happened in the meantime; only in retrospect did they make sense. Education was key to my survival & I served on the LFA board in Akron for a while - at that time drs weren't nearly as aware or educated as they are now. Just curious - is anyone here from the old '80's board that was on AOL?