Hi Laura, nice to meet you, and welcome to WHL.
I'm frustrated with mine, too. I need to be retested, and I told the doctor plenty of times how bad I hurt and how often. She seemed to completely ignore me. Finally, after nearly a year of arguing with my new doctor, I'm getting a CBC and thyroid blood test done. Hopefully I will be rediagnosed and have something done to deal with it.
I think everyone has had these problems, and still are. I'm positive you'll get a lot of feedback and support.