I just joined today. I was diagnosed back in 2006. I have had oral ulcers since I was first diagnosed (my first symptoms and later confirmed through blood tests) and they have started spreading to my throat. I am currently in alot of pain and discomfort. Eating is akin to torture. I was given plaquenill but it doesn't seem to be doing anything. My rheumatologist is reluctant to start me on anything stronger since I have jevenile diabetes.
Does anyone have any info on dealing with these mouth and throat ulcers. The doctors don't seem to take me seriously and say to just keep using the lidocaine based mouthwash. That's fine for the mouth ulcers but not for the throat. She doesn't even think it could be related the lupus. She says it might be herpes but I had a biopsy a few days ago and the doctor didn't even mention herpes as a possibility.
Any help you guys could give me would be greatly appreciated.