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Thread: vitamin D deficiency

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    Default vitamin D deficiency

    Hy my friends I have vitamin D deficiency
    Does any of you get tested for it?
    Maybe I have osteoporosis?
    How did I get deficiency when I am only 41 years old?
    I am scary and worry

    Happy Easter my friends and all the best in life!
    Love you all Slada

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    I am 26 years old... And [B]I[B] have a Vitamin D insufficiency (there is a difference in insufficient and deficient look into your labs and check it out online). They say it goes hand in hand with Lupus and Fibromyalgia. I am currently taking 50,000 units of Vitamin D a week my dr prescribed. The over the counter Vitamin D doesn't seem to be helping my insufficiency. I believe my body isn't appropriately absorbing it due to the auto-immune thing. I break out in hives when I get anything over an hour or two of sun exposure. I get plenty of sun when I can so it's obvious my body is rejecting the intake. I will have follow up test in 1 month to see if my body responds to accepting the weekly vitamin D regiment. Talk to you Dr and see if they can prescribe you something. I feel it is helping a little with the muscle aches and pains. (or it could be a mental thing). Good luck to you.

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    SeaMonkey has given you excellent information and I cannot think of anything that I can add to what she has told you. I just wanted to reiterate what she said that this deficiency is seen often with Lupus patients and, as such, try not to over worry yourself about why it has occurred.
    Was your deficiency diagnosed by your doctor? If so, did he prescribe or suggest supplements? I, too, take vitamin D supplements due to a deficiency caused by my Lupus. So far, the OTC supplements are working for me!
    Please do not stress yourself about this too much, speak with your doctor to see what, if any, meds or supplements you can take!

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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    My dear friends,thank you so much for all information.....I am still thinking that I have lupus!
    Dear Saysusie,yes one of the doctor from Walk in Clinic told me and he suggest to take some multivitamins pills.
    I still don't have them and I am not sure that is good dosage of vitamin D..
    Dear Summertime are you taking the pills or injections?

    They say it goes hand in hand with Lupus and Fibromyalgia.


    Do you know your lab number?
    What else your doctor told you?
    Why we have deficiency and did you get any other tests,example:liver,kidney,stomach....to make sure organs is fine?
    Oh.....dear Saysuzie did you get any other test like one I mention before?
    Dear friends maybe I do have lupus even if my ANA is negative?
    Thank you all so much to being here with me I am scary((((

    Love you all Slada>3>3>3

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    My friends my vitamin D is 24........and normal is 75-250.......


    very low.......love you all Slada

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    Slada

    if you are worried about osteoporosis, ask your doctor to test you for low calcium in your blood. Hypocalcemia is sometimes associated with low Vitamin D. I take a perscription supplement called Rocalcitrol. It is a Vitamin D supplement that helps your body absorb calcium.

    nonna

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    Slada,
    I've dealt with this, too. My vitamin D levels go all over the place. Last Spring it was 46. by August, it had plummeted to 19, and I was taking the OTC supplement all along. My rheumy had me to take the mega-dose of 50,000 units once a week for three months, along with my usual 1000 unit daily dose. This February, it was up to 85, and she was happy. I'm now taking 2000 units daily. we'll see what the next reading is like.
    Low vitamin D levels just seem to be common with AI issues. Just take the supplement and get out in the sun a bit, if it doesn't bother you.
    Hugs,
    Marla

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    Thank you my dear friends!
    I will ask the doctor about calcium and he can send me for one more blood test.
    I will go in the morning to check again mu hs CRP and ESR....
    Dear Nonna do I need talk with my doctor before taking any tablets/vitamin d?
    Dear Marla can internal specialist help me?
    I am going to see him finally April 30,and reumatologist Avgust 2.......so does he know about AI problems?
    Do you feel any difference now that your D is 85?

    THANK YOU ALL SO MUCH FOR HELPING ME AND I AM HAPPY TO HAVE WONDERFUL FRIENDS IN THIS FORUM!

    NOBODY CAN UNDERSTOOD ME BETTER THAN ALL OF YOU!

    LOVE YOU ALL SLADA))))))

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    I found out I was vitamin d deficient while I was pregnant with my last child. He is now 9 months old. I asked for it to be tested (didn't know I had lupus then). I had been supplementing about 5000 ius a day for a month before having it tested and it was still only 23. My OB said it was no big deal, that I was only a "little low," and that she wasn't going to treat it while pregnant. I felt near death on many levels, and at the recommendation of my chiropractor, I started taking D3 softgels that I bought at Whole Foods, 10,000 ius a day to start, and then 5000 ius a day after a few weeks. After a few months of this it came up, and last time I had it checked it was 61. I have been diagnosed with lupus in the meantime. I felt much, much better after getting on vitamin d. Even though I feel fatigued and achy now, it was so much worse when my vitamin d was at such a low level. I believe there is a connection between low vitamin d levels during childhood and the onset of autoimmune diseases. My daughter has celiac disease. Her vitamin d level is also low. We supplement. I have never had any problems with the sun. I hope I don't develop any. I have a rash, but it is not a result of sun exposure.

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    My dear friends thank you so much for your letter!
    I can't believe that all of you have low vitamin D and lupus,and this is not coincidence.
    I think I have too!
    I am not using anything before some of the doctor recommend because I read that to much of vitamin D is not good.
    So I am looking forward to see my doctor next week and find out.
    Sorry to hear that your daughter is sick too and I hope she will be better in future,maybe when she grow older.
    I am presently undiagnosed!

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