I want to apologize for being so late in joining this conversation and in offering you my welcome. However, as usual, other members here have shown you how caring and informative the people are here and have made sure that you were welcomed. We want you to know that you are never alone when you are here with us. Also, you've been given some excellent advice and I am glad that you found the Spoon Theory useful. So many of us have used it in an effort to explain our daily fight with this disease.
I am glad that you've found a doctor who understands the importance of treatment with this disease because it is a progressive disease and can be dangerous if left untreated. I hope that the Prednisone continues to work for you. Since you are unable to take the Plaquenil, there are other medications that you and your doctor can consider along with the Prednisone in order to give you more relief from your symptoms. One alternative to Plaquenil is a slightly different anti malarial called Quinacrine. For lupus, the dosage for adults is usually around 100 milligrams (mg) once a day for several months, after this time, the dose may be decreased depending upon the response of your symptoms.
Also, if your doctor does not want to use Quinacrine, there are other classes of drugs, also called DMARDS (disease modifying anti-rheumatic drugs) that are also used. These include Methotrexate, Imuran, and Cellcept. You may want to ask your doctor about these alternatives that can be used in conjunction with the Prednisone. Some of these drugs also may be used to help you reduce the amount of Prednisone that you are taking.
Many of us have had to work through issues with the help of a therapist and I am glad to hear that you are doing the same. I always advocate that it is just as important for us to take care of our emotional health as it is for us to take care of our physical health because one cannot heal without the other.
As everyone here has mentioned (and as you've seen) you will never find that you get no responses here. Everyone here wants to help and there will always be someone here for you when you need us.
Again..let me welcome you to our family and send you a very warm welcoming hug!
Peace and Blessings
Look For The Good and Praise It!