Hey I just realized your reply to my post so sorry it took me so long to get back to you! I actually go to Johns Hopkins for both of my specialists. My rheumy is Dr. Manno at JH's Rheumatology Dept and my neuro is Dr. Probasco at JH. They both have "higher ups" above them so to speak that they work with. I have not heard of your drs but Im wondering if Dr. Ludmer is an actual "Lupus" Specialist or what? Also, if they said you didn't have a seizure disorder than what would you have? seizure related to luipus or "UTCD" or what?
*LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011 Secondary Adrenal Insufficiency Dx: 2012--Current Meds:
Hydrocortisone 10mg A.M. & 10mg 4P.M.
Protonix 40mg 1x/day
Flonase 50mcg 2 sprays each 1x/day
Wanna know my story, just ask!