I have had SLE since i was 16 and it manifested as severe liver & kidney failure, pancreatitis, brain inflammation and terrible joint pain. After a few years of Cytoxin, methotrexate, plaquenil and prednisone, I was in remission. 2 years ago when I was 6 months pregnant with my son, my liver started to infarct and I had to deliver my son at 26 weeks, 1lb 11 oz. Since his birth I have begun to experience more flares and have been on Plaquenil and Cellcept to control my liver I then switched from Cellcept to Imuran because of the cost and have been doing pretty well. My labs are still abnormal but I seem to be pretty controlled. Yesterday, my rheumy reported that the protien and blood in my urine was very elevated and said that she thinks I have active kidney disease caused by my lupus now. She wanted to put me on 40mg of prednisone and I declined (for fear of the drug and side affects). I am now waiting for an appointment with a kidney specialist and am pretty nervous. I found this website in hopes of connecting with someone who has had a similar exprience with lupus and get opinions on the meds.
I know the imuran has been helping me and I haven't really had any side effects, my biggest fear is that it is cancer causing. I don't know whats better, be sick with Lupus now or have cancer in 5 years. Is anyone else struggling with this reality?