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Thread: New here but not to Lupus.

  1. #1
    Join Date
    Apr 2010
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    Unhappy New here but not to Lupus.

    I have had SLE since i was 16 and it manifested as severe liver & kidney failure, pancreatitis, brain inflammation and terrible joint pain. After a few years of Cytoxin, methotrexate, plaquenil and prednisone, I was in remission. 2 years ago when I was 6 months pregnant with my son, my liver started to infarct and I had to deliver my son at 26 weeks, 1lb 11 oz. Since his birth I have begun to experience more flares and have been on Plaquenil and Cellcept to control my liver I then switched from Cellcept to Imuran because of the cost and have been doing pretty well. My labs are still abnormal but I seem to be pretty controlled. Yesterday, my rheumy reported that the protien and blood in my urine was very elevated and said that she thinks I have active kidney disease caused by my lupus now. She wanted to put me on 40mg of prednisone and I declined (for fear of the drug and side affects). I am now waiting for an appointment with a kidney specialist and am pretty nervous. I found this website in hopes of connecting with someone who has had a similar exprience with lupus and get opinions on the meds.

    I know the imuran has been helping me and I haven't really had any side effects, my biggest fear is that it is cancer causing. I don't know whats better, be sick with Lupus now or have cancer in 5 years. Is anyone else struggling with this reality?

    Please help..

  2. #2
    Join Date
    Nov 2001
    Victorville, California
    Blog Entries
    Thanked 1,128 Times in 743 Posts


    I've not encountered your particular problem, but my daughter did. I do know that Prednisone is the fastest and most successful drug to counter kidney damage due to Lupus. Yes, the side effects are scary, but sometimes the alternative is worse (like compete renal failure!).
    Do talk to the kidney specialist to see if there is an alternative treatment that works as well as Prednisone. I wish you the very best and I hope that you find some answers that work for you.

    Peace and Blessings
    Look For The Good and Praise It!

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