I think the latest trend is to keep patients on Plaquenil long-term. I did go off Plaquenil for a short time, last summer for about a month. But then I started feeling bad agaiin, pain, fatigue especially, so the rheumy put me back on it. I dont't mind all that much, though, because I know it helps.
Whenever I'm in a major flare, I go on Prednisone, 30mg to start, then taper off slowly. I haven't needed it since the late fall/early winter and I'm hoping I can stay off it until the fall...we'll see.
Lupus, you have no chance!
Love and hugs,
(mom to my little Chihuahua, Brandi)
Diagnosed with SLE, Sjogren's, Reynaud's, Celiac, and arthritis November 2006.