I've not posted in a while, honestly because I've been in a bit of a shock. I went to my rheumy a few weeks ago, and when she looked at the labs, she said I do NOT have lupus! What?!?! She said everything is from Sjogren's, which I already knew was "advanced" and very active in my system. I didn't understand how I could have the butterfly raash and photosensitivity, yet not have lupus. She said it's possible, that two symptoms are not enough for a diagnosis. What confuses me is that when I was first diagnosed in 2006, there was no doubt I have lupus. The labs ALL showed it. So is this remission?? Can I be in remission from lupus while the Sjogren's is horribly active? In the end, I guess it doesn't matter all that much...the treatment for lupus and Sjogren's is probably much the same, and she said to stay on Plaquenil. Just weird and confusing for me.
And now I'll try to catch up with everyone, it feels like I've been away for ages!
Oh, and I decided not to go on the methotrexate. She agreed that I'm "okay", not great, but we can hold off for now and see what happens because spring and summer are usually my healthier times of the year. Maybe in the fall we'll consider it again.
Lupus, you have no chance!
Love and hugs,
(mom to my little Chihuahua, Brandi)
Diagnosed with SLE, Sjogren's, Reynaud's, Celiac, and arthritis November 2006.