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Thread: Another post about the leg symptoms..theories and questions?

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  1. #1
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    Question Another post about the leg symptoms..theories and questions?

    Ok so for those of you who have read my leg symptoms post, I was thinking back today to when I was first being tested and the positive results I did have. My symptoms included: -burning leg pain(which eventually spread to my arms bearing the same symptoms) -leg ache(widespread not just limited to the joints)...Lately before the burning started coming back with this pregnancy, I realized I have tenderness in my legs where I usually have the burning..so is that muscular in origin? I ask because I used to have elevated CPK's in my bloodwork. Not very high (200s-300s) and was tested for the neuropathy but the only muscular test i had was the EMG's. Could those alone be conclusive or should a biopsy be done? I had one biopsy done but that was to check for small fiber neuropathy. I am just wondering if now the pain all along has been more muscular than nerves and if the tenderness im experiencing is able to be considered a type of "weakness" and could aide in diagnosis....?? Because then that would mean that with CPK might actually mean something! lol Just a thought..please comment! -Britt

    *11 weeks 3 days on March 9th 2010*
    *LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
    Plaquenil-200mg 2x/day
    Prednisone-7.5mg 1x/day
    Methotrexate- 2.5mg 4 pills 1x/week
    Keppra-750mg 2x/day
    Daily Vitamin-1x/day
    Folic Acid- 1mg 1x/day
    Protonix 40mg 1x/day
    Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
    Vit. D 800IU's 1x/day
    Lyrica- 75mg 1x/day
    Flonase 50mcg 2 sprays each 1x/day

    Wanna know my story, just ask!

    *Lord_Walters_Lady* <3

  2. #2
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    Britt,
    I'm dealing with the same questions. I've also had a muscle biopsy, but they were looking at the mitochondria at the time. I have many of the same symptoms that you have, and I never seem to get any answers. The rheumy is sending me to her neurologist buddy next week, so I'll let you know what he says. I also intend to ask lots of questions when I go to the Sjogren's Conference in San Francisco next month. One of the speakers will be talking about neuropathy in Sjogren's, so I intend to pounce with my questions. I'll report back with what I learn.
    Take care,
    Hugs,
    Marla

  3. #3
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    Ok great. I look forward to hearing about your experience and what you learn!
    *LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
    Plaquenil-200mg 2x/day
    Prednisone-7.5mg 1x/day
    Methotrexate- 2.5mg 4 pills 1x/week
    Keppra-750mg 2x/day
    Daily Vitamin-1x/day
    Folic Acid- 1mg 1x/day
    Protonix 40mg 1x/day
    Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
    Vit. D 800IU's 1x/day
    Lyrica- 75mg 1x/day
    Flonase 50mcg 2 sprays each 1x/day

    Wanna know my story, just ask!

    *Lord_Walters_Lady* <3

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