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Thread: Newbie from Missouri

  1. #1
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    Default Newbie from Missouri

    Hello to all,

    Where do I begin.....about a month ago I was diagnosed with Pnemonia...had 4 rounds of antibiotics to no avail. Two weeks after 3 antibiotics...I returned to the doctor with a huge amount of pain in my chest and around my rib cage..figured I had Pluerisy. The doctor didn't take an xray but said I probably had torn cartilage in my rib cage from coughing. Monday I drove myself to the emergency room because the pain had become unbearable. The er doctor took xray and did blood draw..my regular doctor called me and wanted me to come today about the results and said they needed more blood. She has ordered a ANA and RA test and said that she wanted to test for Lupus. By the way....I do have Pluerisy...

    I have spent all day trying to educate myself on the desease...and there are so many symptoms that I have had over the years that can be connected to Lupus. I have very bad reactions to sun....every year for the past 4 to 5 years....I end up getting shots to get the rash to disappear. On the left side of my nose...I have a patch of what looks like spider viens..completely covering that side and spreading under my eye..(but is not a malar rash)..looks different. I have also recently found a couple of spots on my lower leg..maybe broken blood vessels or clots..I do have a lot of aches and pains...however..I try not to complain..I was beginning to think it was just my age. I have a lot of bad headaches that I attribute to stress..or tension.

    I'm not sure if I will end up with this diagnosis....however..I feel almost sure this is what it is and I am scared to death. I am glad that I have found a support network.

    Just wondering...is there anyone out there that had these similarities that can share their story with me?

    Thanks

  2. #2
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    Hi Shaines,
    Welcome to WHL. You've come to the right place for information and understanding. If you read through the threads, you'll find that many of us have been through much the same as you. Often it can take a lot of complaining to a lot of docs before getting the correct diagnosis and medications. Once your tests are back, if your doc doesn't recommend a rheumatologist, you might want to look for one. They are the real experts with autoimmune problems, as I'm sure you've read. Just beware, since there are good ones and bad ones out there. Keep trying until you find one that you feel comfortable with.
    What part of Missouri are you in? I used to be from Missouri - I grew up near St. Louis and went to college at SLU. We've also lived in Columbia, Mo. You should be able to find great docs in St. Louis, with SLU and Washington U. having such great medical facilities. Of course, Kansas City Mo. or Columbia should also have good ones. Thanks to the Air Force, it's been a long time since I've lived in Missouri.
    Keep on learning as much as you can. You'll find the stickys at the tops of each of the fora to be very helpful. Come back to chat, vent or ask questions. There is usually someone hanging around who is willing to chat.
    Keep us updated.
    Hugs,
    Marla

  3. #3
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    Marla,

    Thank you for your quick response. Yes, I live very close to st. louis and that is definitely where I have been doing research as far as finding a Rhuematologist. Im trying not to get myself too worked up..want to wait for results, however no matter what those results show....I will continue on to a specialist until I feel satisfied with the answer Im looking for.

    My head is already spinning with the world of information on this site. Thanks to all for sharing!

  4. #4
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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Hello and Welcome Shaines:
    Welcome to our family. Marla has already greeted you and given you some good information. I am sure that others will be along to share with you and to welcome you. One thing that you will learn is that Lupus affects each of us differently. There may be some who have had symptoms like yours who can offer you some advice based upon their symptoms. You will find that almost everything that you experience, someone here has experienced it also. So, you are never alone when you are here with us.
    You are doing the right thing in learning as much as you can about Lupus, its treatments, its medications and how it affects you. Even if it turns out that your diagnosis is not Lupus, you are still welcome to come here for questions, information and support. Lupus is one of many auto-immune disorders that afflict us, so everyone of those disorders is welcomed here!
    I am glad that you found us and that you joined us. I am sure that you will find friends here and that you will always be welcomed and supported.

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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    HI Shaines,

    Welcome to the forum.Im sorry you have been through so much pain,but all the members here will identify with you,so ask anything.Look at the ''sticky's'they have very useful answers to questions also.When do you get your results or are you being refered to a rheumatologist? Just know we are all here for you.Glad you found us.
    love
    Amanda.xxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

  6. #6
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    Thanks to all for the warm welcome! I was awoken yesterday with the most excruciating pain in my legs..primarliy on my right side..in my hip, knee and ankle and radiating throughout. All I could do was cry..and try to get control over the pain. It finally went away last night and so far this morning it feels pretty good. I think the unexpected really scared me so the pain maybe seemed to be really bad!

    I think my tests results will be back either tomorrow or Tuesday....and at that point they will refer me on to a Rheumatologist. I am hoping for the best...but ready to accept the outcome! My uncle was diagnosed with MS and the complications from the disease took his life at a very young age....and now his 21 year old daughter has been diagnosed with MS. I often wonder if this disease can be connected?

    I am hoping for the best, but prepared to face the challenges the outcome may bring me. Im so glad I have found you....somewhere for support and answers and know that I'm not alone in the battle!

    Thanks a bunch,
    Shaines

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