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Thread: can you please help me with some information because I am still waiting for results?

  1. #41

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    My dear lovely friends!
    Here is what happen to me....blood test come back negative for ANA and all other but my hs-CRP and my ESR are still very high.Now other problem is ASO titre come back high and I was hoping rheumatologist will help me but I was WRONG!((((((((
    She told me this is not in my field and you have to see ENT specialist because you have strep in nose or throat.I told her;NO I AM NOT SICK AND I DON'T REMEMBER LAST TIME I WAS SICK.She was so mad at me and told me I have nothing to do with you anymore because I treat just rheumatoid disease.
    I am now in God hands because no doctor want to help me(((
    I am going to see ENT specialist on Friday about my lymph node and I am almost sure he will not have answer too......
    I found socking journal about ASO titre,ESR and CRP and diagnosis of RHEUMATIC FEVER!
    I have with me and I will call rheumatologist again and if she want to see me I will put that paper in front of her and told her how bad person she is......I am mad,tired,scared and lost but I still have little power for fighting just because I have two children and I do not want to be one of person who "come late to see a doctor".They will not destroy my life even they try!
    I have God with me and he will help me!
    Love you all a lot
    Slada

  2. #42

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    Slada,

    So glad to see you posting again but so MAD at what you have been through.Just remember this....doctors DO make mistakes and not all of them are good,belive me i know!! You keep strong for your children and try each day to do just 1 happy thing to take your mind of this illness.I know at the moment you have no answers,but there is always hope....so never loose it.Keep posting and you will see many of us are going through and have been through the same as you with unhelpful doctors.There also are good doctors out there....hopefully soon one of the appointments you go to will be able to send you to that one good doctor to give you the answer.Just hang in there...we are all here for you.
    Lots of love n hugs
    Amanda.xxxxxxx

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    slada,

    I am sorry to hear that you had such a terrible ordeal with the dr. I hope you don't give up. Like Angel said, we can't loose hope because the answers are there just waiting to be found.
    Sandy
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



  4. #44

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    My dear Angel,my dear Sandy and all my friends!
    I went to see ENT specialist and he have no idea what is wrong with me (((
    He told me to fax my blood test results so he will call me if he found anything......((((
    ANYTHING!
    My blood test is not ok,I am so sad my dear friends and I can't believe he does not know,not just him.....he is "specialist" but all other "doctors".
    He told me about neck ultrasound:we have to watch for one small lymph node.
    Come back for one year!!!!!
    I know from before I had 3 small cyst on my thyroid 2,5mm......and those cyst grow to 5,mm but now it is not a cyst,I have 5mm lymph node and it say on report:
    HYPOECHOIC----((((((
    Can you believe me,he never told me and he never told me what radiologist write in report:
    recommend:
    thyroid function studies and follow up

    I ask for copy of my ultrasound and I read by myself!
    Why they turning back on me,why nobody want to help me?

    Love you all Slada--my dear friends

  5. #45

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    Slada,

    Main thing is DONT give up hope.Many are in the same boat with diadnosis that never come quickly.But i believe one day....you and i and many others will post our news here.Just keep posting as we understand the pain n hurt Doctors can cause us.There are some good doctors out there,its just finding them!!
    Thinking of you
    love
    Amanda.xxxxxxx

  6. #46

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    My dear friends,I have fever again-low grade and I feel so chili for last two days.
    Yesturday at walk in clinic I have 37,2 fever and one young doctor is willing to help me this is what he told me.I ask him about Lupus because my ANA is negative and he told me I can still have Lupus or Rheumatoid Arthritis even if my ANA is negative this is exactly what you told me my friend.I ask him about Anti-DS DNA AND he order this test for me together with ASO titre.I will do it next week!
    I ask him about LYME disease and he order those too!
    I am very happy my dear friends because he is listening to me and he is very,very happy about me talking with you my friends.He get his school done in US and he believe I can still have autoimmune disease based on my symptoms.
    This is just wonderful,I am so happy to find great doctor.Finally!
    He give me some antibiotic and he wont to see me next week.
    Love you all Slada)))))))))

  7. #47

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    YIpeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee im so happy for you Slada.What a difference a doctor can make you feel just by actually listening to your symptoms and seeing your pain.Goodluck with the antibiotics and let us know what he does next to help you.You keep posting and keep that hope inside....one day you will write here with proper answers what you have fought for.
    Lots of love
    Amanda.xxxx

  8. #48

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    My dear lovely Amanda,thank you so much my friend for listening to me for happines you share with me!))
    I went today for blood test and I can't wait for results.I ma really hoping I will know some answer soon.Four years it's a lot to being true this mystery and pain.
    My doctor will not know till everything is done,I mean family who give up on me.
    I will let you know my dear friends soon I can.
    Love you forever
    Slada

  9. #49

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    Like i said Slada,

    There are many of us here who have gone through the same as you,friends have gone,family have changed towards us,life in general is very different.But many here have finally got answers after many years.So keep that hope.Lets see what the results come back as and hope its something the doctors can finally give you meds for and your pain eases.We are always here for you so keep posting.Thinking of you.
    love n hugs
    Amanda.xxxxx

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