Page 1 of 20 12311 ... LastLast
Results 1 to 10 of 197

Thread: Just updating everyone

  1. #1
    Join Date
    Feb 2009
    Location
    TEXAS
    Posts
    413
    Thanks
    9
    Thanked 0 Times in 0 Posts

    Red face Just updating everyone

    I had ultrasound on carotid artey yesterday. Waiting for results. Of course the technician said why would you being 36 have artery problems, your to young! I said yeah and to to young for macular degeneration, and everything else! Bad thing is I feel very old!!!!!!! I will be 37 on April 18th. I seen Rhuem. he wants to wait to try an stop my cns attack until Neuro sees me 23rd! So hopefully it does not do anymore damage until then. Ill let everyone know if ultrasound shows anything.One good thing if it is MS too, I started some therapy a bee stung me on the left hand lastnight!Thats the side that was numb! I seen where people used bee stinging to help with their ms. Not sure how or what it does! (so any ways)lol Have a great day. Kathy
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  2. #2
    Join Date
    Jan 2009
    Location
    Sylvania,Ohio
    Posts
    1,409
    Thanks
    79
    Thanked 70 Times in 58 Posts

    Default

    Thanks for the update sweetie!!! Yeah, 36 (almost 37) but feel like youre 90 huh! I hear ya! Drs need to realize it isnt the # ,its the illness thats running through your body thats doing the damage! They're a one way street! Frigin tunnelvision! DUH!!!!!
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

  3. #3
    Join Date
    Feb 2009
    Location
    TEXAS
    Posts
    413
    Thanks
    9
    Thanked 0 Times in 0 Posts

    Default

    thanks jeanette! haha thats so true!
    Last edited by KATROACH1972; 04-08-2009 at 04:03 PM.
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  4. #4
    Join Date
    Dec 2008
    Location
    Atlanta
    Posts
    3,115
    Blog Entries
    1
    Thanks
    27
    Thanked 79 Times in 69 Posts

    Default

    hi kathy,

    i have a friend with MS...when her husband was alive, they used bee stings as one of her treatments,,,,she had great success, and claims to have looked forward to getting stung. I think they ordered special bees, but i will get more information if you would like.
    Phyllis

    share a smile today

  5. #5
    Join Date
    Feb 2009
    Location
    TEXAS
    Posts
    413
    Thanks
    9
    Thanked 0 Times in 0 Posts

    Default

    Thanks sweetie! I would appreciate that. I don't know if I have that or not, but still would be interested! hugs Kathy
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  6. #6
    Join Date
    Dec 2008
    Location
    Phoenix, Arizona
    Posts
    1,013
    Thanks
    0
    Thanked 22 Times in 19 Posts

    Default

    I have a really hard time with my lungs! I will be 30 but I have the lungs of a 78 year old.....at least that is what the doctor told me. I hate being young and feeling so old! I feel like we are just falling apart very slowly! I told Tim to keep the tape handy......we made need it!!!!!! I am thinking of you and sending you well wishes!!!! Hang in there!

    As I grow to understand life less and less,
    I learn to love it more and more.

    Age 29, Lupus for last 7 years

    Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram

  7. #7
    Join Date
    Feb 2009
    Location
    TEXAS
    Posts
    413
    Thanks
    9
    Thanked 0 Times in 0 Posts

    Default

    Thanks sweetie! I will have to use duct tape! I am from Texas! haha Redneck thing!hugs from me Kathy
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  8. #8
    Join Date
    Feb 2009
    Location
    TEXAS
    Posts
    413
    Thanks
    9
    Thanked 0 Times in 0 Posts

    Default

    Hi everyone, got some good and yuck news. My carotid artery was fine! Now I am having hallucinations at night as well as daytime! but only when I am laying down! weird! My C3 was high and my CRP was high. My primary at first said cut my prednisone, but when he found out i have only been on 5mg a while he said well maybe its not prednisone! Maybe its brain inflamation, and said well we will see 23rd! I took extra prednisone today!, because I guess all the lose stools I have had its irratated my upper left bowel. It has been burning like crazy, and I have been vomitting two mornings now. Well, sorry I have been such a crybaby. Just scared that all this could be cancer that has been spreading for years. I have spots on lungs, that they said were just fat, and then cysts on kidneys which they blew off, and now pain on left side (which all of these things are on my left side) Except one brain lesion its on right and left. I am rambling now. Hugs to everyone, and much thanks Kathy
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


  9. #9
    Join Date
    Jan 2009
    Location
    Sylvania,Ohio
    Posts
    1,409
    Thanks
    79
    Thanked 70 Times in 58 Posts

    Default

    AWWWW, so sorry my dear Kathy! You make sure you prepare for the worst but EXPECT THE BEST! Dont scare yourself into feeling worse sweetie, remember, you are doing everything to find out whats exactly wrong, so while you do more tests and/or wait for results jump on here or read a nice pick-me-up book or eat some ice cream, YUM! Just not too much, then you'll feel worse! Watch your favorite shows to keep your mind active. Im sorry you're scared,i wish i could HUG YOU!!! Ill send one instead! HUGGGGGGGGGGGGGGGGGGGGGGGGGGGGG! Keep us updated hun!!!!!! XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

  10. #10
    Join Date
    Feb 2009
    Location
    TEXAS
    Posts
    413
    Thanks
    9
    Thanked 0 Times in 0 Posts

    Default

    thank you Jeanette! you are the best! hugggggggggggg back!
    Sorry i'm not home pain! and don't leave message I am not calling u back!




    Lupus,Fibromyalgia,Hypertension, Sjogrens,Raynauds,

    Macular degeneration,Depression,Arthritis


Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •