1. What type of lupus do you have?
A: I have SLE although my new Rheumy is now saying I have 'suspected' SLE.
2. How did it change your life?
A: I'm no longer able to do some of the things that I used to do although because I can't rush around so much now then I'm sitting down relaxing more and this has allowed me time to do some of the things I kept putting on the back burner. Its also given me the courage to go out and join a writers group and meet new people which I never thought I had the courage nor the time to do before.
3. Have you had to/been able to adjust your lifestyle to fit your illness?
A: Its certainly not easy but I have to adjust and so I do.
4. If yes how? In what way?
Its been very difficult as I have two young children under the age of 7 and they have needs of me. But I have a very understanding and helpful partner so that helps a lot. But mostly I've just learned to slow down, to not worry if I'm late for something (unless its a doctors appointment ~lol~) and to allow myself more time to do even the silliest little thing.
5. If no, how has it limited you?
6. How has your medication affected your life, if at all?
A: It makes my join pain a bit better so its affected me in a good way. At the moment, however, I'm being seen for a problem with my eyes although they're not sure its actually caused by the medication or not. The medication also means more frequent trips to the doctors or the optitions to get checked out.
7. Are you on medication to alleviate your lupus symptoms or to control your lupus?
A: Lupus is a bit of an unstable beast and you can't really control it, it certainly seems to have a mind of its own. Best you can do is alleviate some of the symtoms and learn to cope with what you can stand.
8. Why did you join the WHL forum?
A: I came here trying to find out what Lupus was as I'd never heard of it. I found this place before my diagnosis when I was just beginning the testing process. Its my home away from home now, this is my Lupus family.
9. Does it help to have support and being able to talk to others in similar situations to yourself?
A: It definatley helps to have support but it helps me just as much some days to help others. I've put up pictures of my lupus journey, my sunburn, my rash etc in the hopes that someone else might look at them and go 'that's exactly what I look like' etc.
10. If yes, in what way?
A: Ooops see above!
Good luck with your project, let us know how you get on! ~hugs~
Numpty:- (num-p-tee) dialect, chiefly Scot, ~n. 1. a bumbling fool: one who is intellectually challenged. 2. widely known in Scotland as an MSP (Member of Scottish Parliament).