I am frustrated. Sorry if this is random. I am at my wits end. My name is Erin, 27, wife and mother of one, 4 year old boy. I was running a daycare in my home, but had to shut it down because I just couldnt do the 12 hours/day 5 day/week anymore. Plus I was always sick from all the germies the kids brought into the house.
I posted on here about my symptoms a few months ago. Over the last month I have had confirmation of lupus. I went to get a biopsy of the painful, red lumps on my legs and the report came back as lupus panniculitis. I have had joint pain, muscle pain, the butterfly rash an other various rashes, my hair is falling out like crazy . My ana was positive, C4 borderline low. I am just exhausted as you all know what that feels like. Recently the right side of my face was droopy and dr said it was bells palsy. Luckily that went away with 3 days of starting antivirals. When I was at that appt my blood pressure was 146/103! My normal is 120/80. Since the recent diagnosis I have started 200mg of plaquenul 2x's/day. I go back on 3/2 and if I am not improving then rheumy said he will start me on antirejectants.
Yesterday was the worst. I had a major realization that my life as I know it will never be the same. My family and I went out to do some shoppping. I made it half way through the store and I could barely walk. My ankles and legs were so swollen. By the time we got home my lovely lupus fever kicked in and I curled up in a ball on the couch for the rest of the evening. I just dont know how I am going to survive this without any pain meds. I've tried 800mg of ibuprofen and Tylenol Arthritis and neither work! All this pain and stress and making me depressed. I just dont know what to do or how to cope with all this. Sorry if I sound like a whiner I just cant live like this. How do you cope with the pain and the ups and downs. It seems one minute I'm fine and then the next I can hardly walk.