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Thread: I learned something new yesterday..

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    Unhappy I learned something new yesterday..

    i saw my PCP yesterday. I had all the specialist send updates to her and asked her to review them with me. I found out that I've been hit with a double whammy and didn't know it. Hassimoto's disease is also an autoimmune disease. go figure! One good thing is that the Parkinson's symptoms are supposedly unrelated to the Lupus. Any one have any thoughts on that?

    Basically i posted this because I needed to say it and see it written down.

    Nonna


    Enjoy Life to the best of your ability

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    Oh Nonna i hope you are coping as best a possible and taking it all in what you have.Remember we are all here for you always.How do you feel about this? What has the doctor done to help you? Tests and meds been given? You just keep posting here,between us all we will try and help with support, maybe find support groups,help we'll try anything you want us to.
    Do you have a good support system,family,friends at home? Just dont be too overwhelmed with everything if possible,keep posting...writing helps allot.
    Lots of love
    Amanda.xxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Nonna (02-20-2010)

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    I'm coping much better; my family is there for me. My daughter is wonderful. Every morning she tells me to be healthy today. Thanks, nonna

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    I saw the rheumy on Friday. she's more positive on the Lupus diagnosis because of the Hashimoto's. She said that when you have one autoimmune disease you can easily have another. My meds have been pretty much set now. From what I've read I seem to be lucky. prednezone is only 5mcg a day while the plaquinil is 200 twince a day. the good thing about the Plaq (knock on wood) is that I did not have my winter bout of bronchitis/pneumonia.

    thanks for listenng,
    nonna

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    Hmmm, I wonder if taking Plaq is why I didn't catch my hubby's awful cold last week? The PHD candidates share an open office, and one of them went in with a lot of coughing, sneezing, etc. It wasn't long before the others got it, including my Jeff. He told me that the other guys' wives were complaining because they and their kids got sick, too. I was braced for it, but I didn't get sick at all.
    Marla

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    Hi Nonna,
    I was diagnosed with Hashimoto's disease shortly after having my son in 2003. Then I was diagnosed with ITP (automimmune disorder that affects one's platelet levels) and Lupus when I ended up in the hospital after complications from a simple biopsy procedure in November 2008. So I definately feel what you are going through right now. It can be overwhelming at times. Please feel free to private message me if you want to chat more. Keep your chin up!
    Jina

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    Jina,
    That is so weird. I started the thyroid problems and had to have surgery in '79; 2 years after my son was born. Let me say that if you also need a shoulder to cry on or to vent I'm here.

    Marla I'm convinced that's why I haven't caught the crud from my grandchildren. They are coughing and sneezing and blowing all over the place and insist on hugs and kisses. I don't care; because I know I will catch it no matter what, but not this year. It's got to be the plaq.

    If I understand the Plaquinel correctly it is an anti-inflammatory drug.
    please correct me if I'm wrong anyone.

    thanks to Mother Teresa and St Matthew; I know the Lord doesn't give me more than I can handle. But like Mother Teresa: I just wish he didn't trust me so much.

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    Just to let you know im thinking of you and how cute your daughter says that,so very innocent.We are always here so post anytime.Ive been having migranes so carnt see so well like a disco in my head ,but you are in my thoughts always.
    love Amanda.xx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Amanda hope the migraine goes soon. Get in a dark quiet room and play some soft music and sleep. Take youdrug anddo your best to kick it's butt.
    I havean anomally in my brain that give me migraine/cluster headaches so I know how you're feeling.

    Nonna

    have faith and live to your best

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    Nonna,

    How is your thyroid issue going? I am in the midst of a thyroid diagnosis. Something the doctors have been looking at for years and years but always said no, your labs are "normal". I am still a babe learning to crawl in this new disease's land. any advice would be greatly appreciated.

    Thanks!
    Sandy
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



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