Hi everyone, i am going through a difficult time with the doctors and i am at a lost on what else to do. I feel as thought i am spinning and it wont stop. I know that you guys give some great advice and reassurance and thats why i decided to post my concerns, because you all seem to understand everything the best and the support is overwhelming.

I have posted in here sometime ago, and it was concerning my ana results and symptoms. Here what has happened since. Well to referesh your memories, i have been having some disturbing symptoms about 4 years now and its just about 2 years investigations have really started with my situation. It started with seeing floaters and getting this pain on the left abdomen that went towards the lower back. The pain is always there, sometimes worst than other days and under my rib cage always seem soar. I did renal function tests, kidnsy test, urine analysis, CT scan, ultra sound and all came back normal. I mean i shouldbe happy about that right! sigh. Did ana test, and all the other tests that follows that after being positive. The two times i did the ANA test the results have been 1:40 fine speckled +, the second time it was still 1:40 but coarse speckled ++. At that time the DS DNA always came back 1:10 Negative. The recent test i did was just on January 18, 2010. The results for that was my ANA was 1:40 nuclear ++ but my DS DNA is 1:10 positive. What i want to understand here is how come previously the DS DNA was 1:10 negative and now it is still the same reading but POSITIVE? Is it because the pattern changed?

My symptoms are:
Hair loss, muscle aches (muscles burn and get tired in legs when walking up stairs and hand muscles ache when lifting), sternum pains, blue nails when in cold, swelling of the lower extremities of my legs, increased floaters, lower left abdominal and back pain and sometimes some small trembling of the hands.

My rheumy suspects SLE when he saw the DS DNA being positive, but for some reason he still hasnt confirm it, because he doesnt think that i fit the 4 criteria or something out of 11. He referred me to a Dermatologist asking her if she thinks i have lupus and if the hairloss is due to that and if she thinks i shouldbe on plaquenil. I dont know why on earth he sent me to her and yes i did go today, and at first she said i could have lupus, then she got confused cause the rest of my test are all normal. Its like she searching for something and she cant find it and you know whats the greatest, at the end of it all, she thinks i am depressed and paranoid and maybe i should read up on that. Boy did i get mad, imagine she would tell me that. So what about my ana and ds dna, thats cause i depressed? I should have never gone there, she just made me feel worst.

Here are my results of my test:


ESR - 16


Anitgen Intensity Class
RP/Sm 1 0
Sm 3 0
SS-A native (60 Kda) 1 0
Ro-52 recombinant 1 0
SS-B 2 0
Scl - 70 1 0
Pm-Scl 1 0
Jo-1 2 0
Centromere B 1 0
PCNA 23 +
dsDNA 2 0
Nucleosomes 1 0
Histones 0 0
Ribosomal P Protein 1 0
AMA-M2 0 0
Control 97 +++

Class Explaination
o Negative
(+) Borderline
+ Positive
++ Strong Postive
+++ Strong Postive

ANA ANF 1:40 DILUTION Nuclear ++


C3 and C4 normal
CPK Negative
RF normal
Liver Function Normal

So anyone could tell me whats going on here? Anyone with anything like this or similiar? Please help. I dont know what i should do, Best bet is to go back to the rheumy with the so called "depressed" diagnosis of the drmatologist. SIGH