Hi and welcome -
You have truly found the BEST site available on the web. The ppl here are VERY informative and compassionate. I am sorry to hear about your daughter, but MANY people have lupus and do not suffer the more serious symptoms. As previously said, scan thru all the posts and you will learn so much.
As for the doctor isssue - there are not many AT ALL licensed rheumatologist in the country (I think my last read said 6000). An internist who specializes in rheumatology is more than qualified to take care of your daughter. However, if you feel you want a second opinion, that is your right of course.
My experience includes visits with some of the most noted rheumatologist in the country (I live in Boston where all docs from Harvard, Tufts, BU, BC, etc) train at my local hospitals. Though my current rheumie from Brigham and Womens is GREAT(he teaches at Harvard), my main care is done by my little 'ol PCP - who is quite brilliant, young and open to new treatments and ideas, and refers me OUT when I have a special need (I have a sepearte kidney doc, nephrologist and neurologist). I dont disagree with Mountaindreamer in that you certainly wnat someone who KNOWS about this disease. She is so riight about the meds and the fact that this is a VERY complex disease and VERY individualized. But there are alot of docs who are very capable who are not rheumatologists.
Maybe it depends on where you live? If a more rural area, you may want to go to the nearest university hospital to have her checked out? But someone mentioned comfort and it is SO IMPORTANT with this disease...you NEED someone who will actually listen to your concerns, not blow you off, etc.
I also must add this: Though I know this must be so devastating for you and your family - no one wants to be sick! - however, there are SO MANY ppl out there who are sick and CANNOT get a Dx and, thus, treatment. THis may sound crazy to you right now, but as you read and learn more about this disease - you will see that there is a positive aspect in the fact that a doctor is paying attention and treating her. The earlier the treatment the better.
Hang in there, get informed...your daugher is lucky to have you for a Mom.
For God has not given us a spirit of fear; but of power, love and a sound mind. 2 Timothy 1:7