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Thread: Another Plaquenil Post...

  1. #1
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    Default Another Plaquenil Post...

    Hey everyone.. I just wanted to see if anyone else had similar experiences as me.

    I've been on 200mg of Plaquenil twice daily since the beginning of November 2009. Since then, my menstrual cycles have been kind of wacky... starting later, not lasting as long and getting more and more light. Now, granted, I'm grateful for the ease up, but it's strange. I even took 2 home pregnancy tests (both came back negative) last week because my last period lasted for all of a half a day!

    I do have an appointment this Thursday with my OB-GYN to make sure nothing crazy is going on... but I was curious if anyone else could offer some insight.

    The new medication is the only thing that's changed since November.. that's why I'm thinking it's the culprit.
    Shannon
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    Proud Momma to an 8 month old kitten. She was on death's door when I found her and now she growing up into a beautiful cat, she's my baby.


    Life isn't about waiting for the storm to pass... it's about learning how to dance in the rain.

    God, grant me the serenity to accept the things I cannot change...
    The courage to change the things I can...
    And the wisdom to know the difference.

  2. #2
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    I haven't had a period since my hysterectomy years ago, so I can't really help with the question. I'm sure this autoimmune thing helped my periods to be so screwy when I had them. I was never "regular". For years mine was so light and sometimes non existent. But since yours have changed recently and the only new thing is the Plaq, it could very well be the cause...or the AI thing doing something. I'm glad you're seeing a doc soon. Keep us posted about what the doc says.

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    I'm no help, either. At 52, mine are more regular than they have ever been. I spent 13 years pregnant, nursing or both, so I had 5 or 6 periods in that entire time. Thanks to that, I think that I'm now doomed to have them until I'm 65! Actually, that's supposed to be good for my bones and skin, but boy, what a hassle!
    I've been taking plaq for almost a year and it sure hasn't affected my periods.
    Marla

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    Thanks guys =) I would be so happy if mine were totally gone.. they used to be unbearable.... although that too has changed since the Plaquenil. Also, I have noticed some improvement already just with the fatigue and diffuse pain, I'd be bummed if we had to ditch the Plaq & go back to square one. Despite that, I already have some eye issues, I was premie and have Retinopathy of Prematurity, so the Plaq was a gamble from the start & the rheumy knew it. I'm going to my retinal specialist in a couple weeks, too, to have him see how things are going after these first 3 months... if there's any indication that it's building up and potentially causing more eye issues, it's out, no question. *Sigh* I suppose this is the life of having an AI disease.

    I think I did come across one other post from someone else about the menstrual disturbances and Plaq, but I can't recall if it was this site or another forum... Then again, my entire medical history is pretty unique, so perhaps it's just me being weird!
    Shannon
    Divorced
    Registered Nurse
    Proud Momma to an 8 month old kitten. She was on death's door when I found her and now she growing up into a beautiful cat, she's my baby.


    Life isn't about waiting for the storm to pass... it's about learning how to dance in the rain.

    God, grant me the serenity to accept the things I cannot change...
    The courage to change the things I can...
    And the wisdom to know the difference.

  5. #5
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    I've only been on the drug for a month - so let me get back with you after a few more and let you know how its affecting me. Hope that things are ok-- but I'd still go to the doctor... it might NOT be the drug and could be something else- like a cyst or something -- so do go in for a check up.

    hugs.

    love and light!
    Melissa

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    Mine actually went the other way >.< They last for at least 7 days (in fact the last one lasted over 2 weeks) and are so heavy that I struggle to go out and do stuff when I have it. I get terrible mood swings (well worse than usual ~lol~) and spend the entire time wishing I was a man!
    Let us know how you get on at your appointment, will be thinking about you!
    C x
    Numpty:- (num-p-tee) dialect, chiefly Scot, ~n. 1. a bumbling fool: one who is intellectually challenged. 2. widely known in Scotland as an MSP (Member of Scottish Parliament).

  7. #7
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    Thanks guys =) Yea, I tend to be a bit overly cautious with my girly bits lately... I've had cysts on my ovaries before and just had a mass removed (benign thankfully) this past August...

    Numpty - =( that sucks that yours have gotten worse, I hope it levels out for you. Mine pre-Plaq were like yours now... It's crazy how it seems to do different things to each of us!
    Shannon
    Divorced
    Registered Nurse
    Proud Momma to an 8 month old kitten. She was on death's door when I found her and now she growing up into a beautiful cat, she's my baby.


    Life isn't about waiting for the storm to pass... it's about learning how to dance in the rain.

    God, grant me the serenity to accept the things I cannot change...
    The courage to change the things I can...
    And the wisdom to know the difference.

  8. #8
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    Update: OB-GYN thinks the weirdness is from the Plaquenil. She did a pregnancy test and it was negative. She still changed my birth control.... I expressed my concerns with the Yaz, and she seems to think a different hormone would help with the migraines. She's putting me on Lo-Seasonique.. so I only have a period once every 3 months. She seems to think that fewer hormone fluctuations might help to calm down the lupus flares... So, we'll see where it goes from here.
    Shannon
    Divorced
    Registered Nurse
    Proud Momma to an 8 month old kitten. She was on death's door when I found her and now she growing up into a beautiful cat, she's my baby.


    Life isn't about waiting for the storm to pass... it's about learning how to dance in the rain.

    God, grant me the serenity to accept the things I cannot change...
    The courage to change the things I can...
    And the wisdom to know the difference.

  9. #9
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    I have the same problem as Numpty as the cycles are longer sometimes and I flare up. I am on Seasonique as well. It was proposed to help reduce the flares. It's a good thing you are off Yaz as I have heard a lot of negatives about it and, in fact, my gyn refused to put me on it knowing my dx. I thought that was very interesting.

    Let us know how you are doing.

    Take care,

    Faith

  10. #10
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    Faith, thanks for the info. It's interesting you mention that reaction from your Gyn refused to put you on Yaz.. the second I told mine I'd finally received a Dx of lupus in November, the next thing out of her mouth was "I want you on something other than Yaz."... perhaps there's more to this than they're really talking about yet. How do you like the Seasonique?
    Shannon
    Divorced
    Registered Nurse
    Proud Momma to an 8 month old kitten. She was on death's door when I found her and now she growing up into a beautiful cat, she's my baby.


    Life isn't about waiting for the storm to pass... it's about learning how to dance in the rain.

    God, grant me the serenity to accept the things I cannot change...
    The courage to change the things I can...
    And the wisdom to know the difference.

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