Ok I think I am starting to peice this together.
Here's my story -
I went to my primary because of joint pain and my sister encouraged me because she has RA (the point being I wasn't dying) the dr ran the ana tests and it came positive with a positive ds DNA - this was about a year ago. I developed mouth sores in the spring and summer, on and off and mild joint pains now and then (some times pretty painful but short in duration) and scalp sores, a few skin sores.
then I think I expereienced my first 'flare' but am only now calling it that. I spent the labor day weekend doing yard work, was in the sun two days, the following week was miserable, dry eys (couldn't see, couldn't oopen them, very sensitive to light - it was rediculously debilitating), also, GERD flared up, couldn't eat, lost 10 lbs, thowing up and the trots, then I develped a cough and breathing pains. All of this was in early September and I sought treatment and little by little things were brought under control, by December 1st I was feeling much better and eating almost normally.
Now I feel almost great! I'm not on plaquinell (taking a break because of the ear ringing) I have only a few small sores in my mouth and scalp -
now, I read that it is common to experience 2-3 flares a year. Is that consistant with you're experience? And do they usually last about six weeks?
Also, when I flare again will it be the same way for me? Dry eyes, GERD, asthma (or whatever that was)? Or can it be completly different. I guess I mean to ask not what will it be for me but what is it for you, do your flares always start out with the same symptoms?
much love to all my lupie friends -