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Thread: Build up of Plaq behind your eyes?

  1. #1
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    Default Build up of Plaq behind your eyes?

    I had my eyes tested just befoore xmas and was told (and shown pictures) that they could see deposits of the hydroxichloriquin building up on the back of my eyes. The optition was not a specialist in Lupus as such but she sent me to see her colleage as he was still training and needed to sign off on certain things including problems caused by meds so it was bad enough that I became a test dummy for a while there.

    Anyway, i then saw my Rheumy at the beginning of January and told them what had happened and he has now taken me off my meds and is going to arrange an appointment at the eye hospital here.

    I was wondering if anyone else here has had a problem with these build ups and what their outcome was? I don't have any issues with my vision, just dry and tired eyes every now and then.

    Thanks for any advise any of you can give.

    Claire
    x

    PS. Sorry if there are lots of typos above but am typing this on the smallest laptop in the world!!!!
    Numpty:- (num-p-tee) dialect, chiefly Scot, ~n. 1. a bumbling fool: one who is intellectually challenged. 2. widely known in Scotland as an MSP (Member of Scottish Parliament).

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    I was told by my optho it is reversible if they catch it early.I am interested to hear what they tell you.
    Andrea

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    Claire, keep us posted okay?

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    I'm supposed to be getting an 'emergency appointment' but the hospital are apparently a month or two behind on typing their letters ~head desks~ I'll let you all know when I finally get an appointment through! ~hugs~
    Numpty:- (num-p-tee) dialect, chiefly Scot, ~n. 1. a bumbling fool: one who is intellectually challenged. 2. widely known in Scotland as an MSP (Member of Scottish Parliament).

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    hi numpty,

    so sorry to hear about this new discovery with your eyes. I have not had problems with this, but i do know that we are supposed to get regular eye exams while on plaquenil. It can cause problems with our eyes. I too am very interested in what the dr. says about this, so please keep us posted. I hope everything works out and that you are able to get back on your medication.....
    Phyllis

    share a smile today

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    Hi numpty,

    My neighbor had the same issue on Plaquenil and it was not reversable whatsoever. I have read that it's very rare to have toxicity; although they have documentation that after 10 years of Plaquenil the higher chances are for toxicity. They switched her meds to methotrexate. It sounds like they caught it in your eyes just in time. I was told by my rheumy that while on Plaquenil, eyes checks are a must every 6 months by an opthamologist. Please let us know what happens.

    Take care,

    Faith

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    I went to see my new ophthalmologist today since my eyes hadn't been examined since last June, back in Texas and this thread got me to worrying.
    He decided to check out my dry eye problems first, then he will dilate my eyes and check the retinas next month. He agreed with my former doc that I definitely have dry eyes, probably from Sjogrens. He said that my left eye was "very dry" and that the right eye was "extremely dry". He's starting me on Restasis, and then wants me to come back in a month to check on if it is helping and to check on the retinas.
    Has anyone else used Restasis? Does it help?
    Marla

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    Hi Marla,

    It does work; it's just not the same as natural tears. I use the systane tears as well during the day. I finally had my lower eyelid drains cauterized after plugs kept falling out. Looking at having upper plug in but I don't want runny eyes either. It's a careful balance so I am going to ask for plugs adn then go from there. The plugs do help a lot more as does having them permanently sealed. I would do it again; although I still use Restasis. I hope this helps.

    Faith

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    Marla - restasis is working for me, though it took a few weeks. I read that one could dose up to four times a day so when I'm really suffering I dose more frequently than rxed. And also use plain sterile drops. I also have silicone plugs in my tear ducts which I have mixed feelings about but they are permenant -

    one other tid bit that really helps: warm wet compresses to the eye. this is fleeting relief, but relief nonetheless.
    much love to all my lupie friends -

  10. #10
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    Just a wee update....
    I went to the eye hospital and had all sorts of horrible things done.. anisthetic, dye and dialating drops put in... couldn't see straight for the hour and a half they left me waiting in the waiting room to be seen by someone else so couldn't even read a magazine. Anyway, long and short of the visit ended up that, yes they could see the deposits but they could be a build up of other things (although he was very vague on what exactly when I asked). He then tells me that its so rare to get that from Plaquinil that he would really doubt that that's what it was. I'm sorry but just because its rare doesn't mean its not that!? Right? Then he tells me that I can go back on the Plaq. His boss (my brain is fogging over the right word for him ~lol~) was off sick that day but he was going to double check everything with him when he got back but everything was basically fine. There are apparently other more indepth tests they could do but they take a lot of time to arrange and are very expensive. (like I care? I'm in the UK where we have the NHS, I won't be outright paying for them myself - I pay my taxes and NI like everyone else).

    That was all last Monday and then today (a week later) I get a call to say that they need me in fairly quick and that they have an opening for Thursday this week. I've to go in and ask to be sent to the Photography department. I'll need more dialating drops... YAY ~sigh~ I didn't put myself back on the Plaq yet, probably just as well it seems. I'll update again after Thursday's visit!
    Numpty:- (num-p-tee) dialect, chiefly Scot, ~n. 1. a bumbling fool: one who is intellectually challenged. 2. widely known in Scotland as an MSP (Member of Scottish Parliament).

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