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Thread: Diagnosed With Lupus

  1. #1
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    Default Diagnosed With Lupus

    Hi..I'm Tim and I was diagnosed with Lupus today. Not to happy. I am an active well rounded professional and never thought this would happen to me. A biopsy and lab work confirmed the diagnosis. Haven't been feeling well for a while but continued to think if I exercised harder it would go away. Will probably tell one of my sisters tomorrow so I won't have to tell everyone. My sisters could never keep a secret anyway. Between my primary physician and a couple of specialists so I have a good outlook. This is a game changer though. Would like to meet people with Lupus. Best Regards...Tim

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    Hi Tim,
    Welcome to WHL. You've come to the right place for information, caring and friendship from people who understand. I'm sure that Rob will be along to greet you soon. He and some of the other men on the board should be able to tell you all about Lupus from the guys' perspective. Meanwhile, feel free to browse through the threads and learn as much as you can.
    I'm sorry that you have to deal with this, but you sound like you have a good attitude. Keep doing that exercise, learn a lot about your condition and become your own best advocate. We'll always be here to try to answer any questions that you may have.
    Take care,
    Marla

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    Hello Tim! Welcome! You have come to the right place! There are many people here who will be of much help and understanding. I hope that you feel welcome and I also hope that you feel comfortable with us! I think that you will enjoy our lupie family!
    A good friend will help you move, a GREAT friend will help you move a body . . . Let me know if I need to bring a shovel!!!

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    Hello and welcome Tim. We will all support you and help you.Take it one day at a time.

    love
    Amanda.xx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Hi Tim!
    Welcome to WHL! I know you are probably feeling a little overwhelmed and scared and uncertain of the future right now and you're probably doing a lot of research online about this new thing that has become so central to your life and I am glad you found us. This is a wonderful site to come to to find out what this disease is and how it affects others and how you can keep living a full life (even if it will be different than what you once thought it would look like). I am glad to hear you have good doctors who are taking care of you. It is important to keep a good outlook. How did you come to Lupus? Was this a long road to where you are or a whirlwind journey? Like Marla said, you should look around the threads and forums and past posts on here. You could spend days on end and still not soak in all the good knowledge on here.
    Sandy
    As long as this body works, I am going to enjoy life to the fullest for each second of every moment that I can.



  6. #6
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    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Hi Tim;
    As you've seen, you have come to the right place to be amongst people who understand, who can give you support, answer your questions and make sure that you know that you are not alone. Being newly diagnosed can be scary and lonely, but you don't ever have to be alone when you are here with us.
    Have a look around here and read some of the stickies found at the top of each forum. They can answer many of the questions that you may have. However, if you have any questions or need any information, you will find that there is always someone here who is more than happy to help you as much as they can.
    I am glad that you found us and that you decided to join our family. You will find this place is filled with the most knowledgeable, friendly, understanding, patient, and helpful people on the web


    Welcome to our family
    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

  7. #7
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hello Tim,

    I'm Rob. I'm 41 and was diagnosed with SLE in 2004. It certainly is a game-changer, but not a game ender by any means. Like you, I never thought I would end up with Lupus, even though my mother has it. Approximately 10% of the people with this disease are men. Never figured on being part of that small cross section, but such is life. Anyway, welcome to our group!

    Rob

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    Welcome..sorry you had to meet all these great people here and not in different type "club". We all have this sucky disease and give each other support and information.lol about the sisters..I have two brothers and two sisters..you are right, nooo secrets between the sisters...hahahah. I hope your family will be very supportive for you.
    Last edited by pandagirl; 01-17-2010 at 06:15 PM.
    Andrea

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    Hi Tim,

    I am so sorry for the delay in my welcome to you. This is a great place, and there are so many people who approach life from different perspectives. Everyone is welcomed, and no one is judged....this is truly a place for you to let off some steam if you need to, or to just ask for a group hug if needed (although sometimes the guys are reluctant to join in on these).

    You mentioned a sister, i am glad that you have family, and i hope they will educate themselves on lupus and how it changes our lives, and then it changes them again, and again.....There is a wonderful story here about the "spoon theory". I have printed copies and share with family and friends...this seems to come closest to explaining our daily encounters.

    again, welcome and i too hope you will decide to join our family.
    Phyllis

    share a smile today

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    Hi, Wecome to the site. Everyone is so nice here.
    But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint. Isaiah 40:31

    Take Care,
    Becky

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