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Thread: Autonomic Nervous System Lupus

  1. #1
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    Angry Autonomic Nervous System Lupus

    Does anyone have symptoms of ANS lupus but not other nervous system involvement(CNS or PNS)and your dr wont acknowledge it let alone treat it? i am soo frustrated! :/
    *LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:
    Plaquenil-200mg 2x/day
    Prednisone-7.5mg 1x/day
    Methotrexate- 2.5mg 4 pills 1x/week
    Keppra-750mg 2x/day
    Daily Vitamin-1x/day
    Folic Acid- 1mg 1x/day
    Protonix 40mg 1x/day
    Bentyl- 10mg 4x/day, Miralax- 17g 1x/day
    Vit. D 800IU's 1x/day
    Lyrica- 75mg 1x/day
    Flonase 50mcg 2 sprays each 1x/day

    Wanna know my story, just ask!

    *Lord_Walters_Lady* <3

  2. #2
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Sorry you haven't gotten any responses to this thread. I'm moving it up so that it can be seen again.

    Peace and Blessings
    Namaste
    Saysusie
    Look For The Good and Praise It!

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    autonimic symtoms are very subtle. you might notice your arms and legs really cold or falling asleep. you might notice you have low blood pressure but a high heart rate because your arteries arent constricting. I have noticed patchy goosbumps, spontainious sexual arousal (that one is fun considering I am friged), incontenence thank goodness not all symotsniously.

    now look at your symptoms and think back how far they go. do they preceed lupus? I was just wondering. I have had neuropathies and have tested for lupus for years and am only now getting possitive tests

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    http://www.lupus.org/webmodules/weba...s%20System.pdf

    I dont know that this is actuallly very helpful but I had never even read or heard about ANS symptoms and I looked it up, and after reading this I swear its like describing how I've felt all week. I just thougth that I would put this up.

    And Mommyof1 I hope your doctor will listen to what you have to say.

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