Hello, my name is Erin. I am a 27 year old, caucasian/native american female. The last two years have been a real struggle trying to figure out what's wrong. I would like to get your opinion as to what you think it might be. I am pretty sure it is SLE, but thought while I wait for my rheumy appt on Jan. 22nd I would get an opinion for those of you struggling with this disease. These are the results from my labs taken on 12/18/09...
ANA Pattern-Speckled--------Normal-No Pattern
EIA Interpretation(Whole lupus panel interp.)-20-39 Weakly positive
WBC(white blood count)-5.0---------Normal 4.5-11.0(Not out of normal range but low considering I had a 103 temp and felt like my bones/joints were breaking)
MCH(mean corpuscular hemoglobin)-31.4-----------Normal-27.0-31.0
Complement C4-22-------Normal 16-47(on the lower end of normal)
About 2 years ago I broke out in the erythma nodules and started feeling unwell. This is when it all started to go down hill. At that point 2 years ago my ana was negative.
These are my syptoms...
Malar rash (Get it when stressed, exposed to sun or heat, and sometimes for no apparent reason)
blocked follicles rash on arms, shoulders, legs
photosensitivity(always break out in a blotchy rash on sun exposed areas, a few years ago I used to be able to spend hours in the sun with no effect)
Sensitivity to hot and cold
Numbness tingling in nose & mouth area
Numbness, tingling, electric feeling in fingers and toes
sensitivity to sun
joint swelling, redness, stiffness and pain
weakness in arms and legs when doing simple tasks(hard time walking up and down stairs, legs and knees weak and shakey)
Infertility(several early miscarriages and 2 failed ivf's)
swelling around eyes
fingers and toes turn white and purple when cold
mild hair loss
erythma nodules(lumps under skin on legs, come and go)
Feeling like I'm in a fog, forgeting simple things like words to use in a sentence(doh)
very dry skin
litttle red flat dots(like broken blood vessels in random spot i.e. arm, eyelid, legs, fingers)
Eye pressure elevated at last eye dr appt.
frequent urgency to urinate
difficulty swallowing, feel like something is stuck in my throat
I've been Googling like crazy and that is how I found this board. There is so much conflicting info out there. I know the Rheumy will be the deciding factor, but still would love to hear your opinions. So based on all this info. What do you think?
ETA: I have added some pics in my albums to show some of the symptoms.