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Thread: I'm new, I've had my diagnosis for 1 month

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    Default I'm new, I've had my diagnosis for 1 month

    From what I've read here, it looks like Lupus effect each person differently. I've had all sorts of "flares", they seem to happen every 5-10 years. Being told I had Lupus was actually a relief. Isn't that crazy? It answered the question of "why are all these medical conditions happening to me. The list of destruction is long. Adding the lupus meds to my long list is disheartening. My main problem is taking all these meds 3 times a day and trying to remember what I took. Actually reading about the brain fogs, I think someone called it that, was very helpful. Short term memory loss can be chalked up to every single thing that's now wrong with me.

    I want to thank the ones behind the scenes here for being here.

    Nonna

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    Welcome to the forum and im sorry you have had the Lupus diagnosis but yes the foggy days are frustrating.I set my phone so it goes off telling me what to take when my fog is there.Sometimes i'll take my meds go and sit down then come back to take them again But i know i took them as they are in a weekly box with the days n times on the box.Yes sometimes i think,now did i fill the box up,but the answer is always yes,so we all understand you.Hope today is a good day for you.Catch up with you soon.

    Love Amanda.xxxx
    I am still here,just been on new meds so unable to function like i used to.I will pop back,just know im thinking of you all and hoping you are keeping on keeping on.xxxxxxx

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    Welcome to WHL Nonna! It's a fab group of great people who will support you, laugh with you and help you navigate the waters of SLE.

    It is not crazy to feel relief when you finally receive the diagnosis. If that were the case, we'd all be certifiable. Lupie-yes; crazy-no.

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    hi nonna,

    welcome to a wonderful group of people who truly care about each other. This is a place where you can get the answers to any questions, and where you can find a shoulder to lean on if need be.....welcome, and enjoy your time with us.
    Phyllis

    share a smile today

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    hi nonna and welcome i understand your relief we al feel the same way it was hard for a lot of us to pinpoint what was wrong with us and get doctors to believe us just having a name for our illness was a relief to most of us and just know we are here for you to chat when ever you need hugs kim l

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    Thank you all, it's been really hard to know whether a symptom is the result of a condition or the lupus/SLE. But knowing that you are all out there and I can get opinions is going to be a great help.

    Life is great, enjoy it to the best of your ability.
    Nonna

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