My name is Kathy. I have SLE Lupus and Sjogrens Syndrome and Pernicious Anemia and Celiacs Spru. I read over your post and see that you have the Speckle pattern ANA. Have you asked your doctor to seriously look into you having Sjogrens Syndrome and or Scleroderma? It sounds more like Sjogrens though with the pain in the shoulders and muscles. I have to wonder if you have a problem with dry mouth and dry eyes. Do you have problems swallowing? You know that Sjogrens can also adveresly affect your lungs in a big way. You don't mention if you have ever had a malar rash that is pretty common with Lupus. Also with Sjogrens you can often times be sun sensitive. Have they tried you on Plaquenil? They use this drug to treat Sjogrens as well as Lupus. I hope that you get some answers. I will be praying that this Rheumatologist that you are going to see is a good one and not an idiot.
Lupus for many years. Like most of my life. Sjogrens that started at 35 and Scoliosis, Spinal Stenosis, Degenerative Disc Disease, Osteo-Arthritis of the spine, Ankylosing Spondilitis, Periferal Neuropathy, mild CP and now just recently diagnosed with PA. I had a disc replaced in December of 2007.
Plaquenil, Sulindac, Imuran, Celiac diet, Tramadol and B12 shot once a month.