I'm yet to have a diagnosis but have had several possibilities thrown at me. One being lupus, the others being mctd, fibromyalgia and chronic pain syndrome. It's proving frustrating. I am 32 and I have had symptoms on and off for 6 years. Started with shoulder pain, muscles weakness, aches, spontaneous subcutaneous emphysema, cervical lymphadenopathy and extreme fatigue with a positive ANA of 1 1280 speckled. I remember being unable to work for awhile and then it just improved. Was taking NSAIDS.
Briefly after this episode i started to suffer with muscle and joint pain with one episode of a petechial rash over my legs when using SPF 8 instead of 30. At the time i had joint pain and fatigue. I had loads of nurofen and eventually improved after a month. My ANA was 1 640 speckled so my doc did an ENA panel which was neg. CRP ESR complement all normal. A rheum recommended seeing a psych. I was disappointed with his attitude and avoided docs alot after this.
This however has been my worst year in 6 years. I feel i have to get to the bottom of things as it's gone beyond the boundary of it just being minor ailments that just happen to people. I have had multiple chest infections this year and have struggled with fatigue, weight loss and occasional flu aches and hypertension. During one of the chest infections i had prednisolone and felt fabulous. After 6 weeks though I started to have shoulder and neck muscle pain. I recently went on a holiday to a humid/sunny place and developed, wrist/hand and ankle joint aches. Sharp stabbing chest pain, flu like symptoms, hair loss, the usual fatigue with a week of brain fog. Yet again positive ANA 1 160 speckled with ENA negative and anti dsdna neg. CRP is elevated at 17. ESR normal as is complement. I am slightly anemic which i find unusual given my meat intake. At one stage i had protein+ and mild trace blood in a urinalysis with elevated urea but this resolved and renal ultrasound was normal.
I am 3 weeks away from seeing a Rheum and am afraid of being fobbed off... again. I also dread the "chronic pain syndrome" diagnosis and a referral to a psych etc. I suspect an auto-immune problem.
Is it possible to have a positive CRP, ANA in fibro or chronic pain?
Are any of my symptoms likely in fibro or chronic pain?
I also have a history of severe PE in pregnancy with hemolysis, thrombocytopenia abnormal LFT's. The placenta was infarcting and my baby was born IUGR. I was brain fogged for a long time after this pregnancy but put it down to mag sulphate and baby brain. Second pregnancy i had mild PE with my second bub being small for gestational age. Post-partum i had a moderate case of Urticaria with my CRP over 200 with normal WCC. I had flu like symptoms/joint aches and chest pain. This has also made me suspect something else. I went on Prednisolone for 2 weeks to get rid of the urticaria and felt the best i had in years. I would have thought if it was fibro that pred would not help symptoms.
If you managed to read all this thanks so much and any input would be greatly appreciated. I'm frustrated beyond words and just don't know what to do next. Thanks again in advance.