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Thread: First flare since Dx

  1. #1
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    Unhappy First flare since Dx

    So, here we are, almost 2 months post-Dx... not that that really matters too significantly being that I know I've been dealing with this for years.. However, it's somehow different this time. Perhaps it's because now I truly know what it is and "IT" has a name now... Also, I think in some weird way I was hoping that the Plaquenil would keep everything in check. Silly to think that I'd never flare again, but alas, the psyche is not always rational.

    I think it was the stress of the holidays and the new weird work schedule that brought it on. I think I tried to deny it for the first few days, explaining it away as other things.. but today, I've pretty much accepted it.

    I'm also concerned because my husband has come down with a bad sore throat and cough the past few days and I'm not sure what to do when I come down with a cold or anything now.. The rheumy said to email / call if I came down with anything before I went back to see him in March, I guess there's certain OTC meds I have to stay away from while on the Plaquenil (???)... So, we'll see.

    I'm just feeling really defeated and disappointed I guess. This whole thing is so frustrating.....
    Shannon
    Divorced
    Registered Nurse
    Proud Momma to an 8 month old kitten. She was on death's door when I found her and now she growing up into a beautiful cat, she's my baby.


    Life isn't about waiting for the storm to pass... it's about learning how to dance in the rain.

    God, grant me the serenity to accept the things I cannot change...
    The courage to change the things I can...
    And the wisdom to know the difference.

  2. #2
    rob is offline Super Moderator Super ModeratorEmperor of the World
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    Hello Serenity,

    I was diagnosed with SLE in 2004. It was a very odd experience learning that I have an incurable autoimmune disorder. Like you, I knew something was up, that something was wrong. When I got the SLE diagnosis, I was numb. And then, I was scared.

    Fast forward 6 years, I still have SLE with active flares on a regular basis. I used to be scared of having a new flare. In some ways, I still am, knowing how bad it can get. But, for the most part, as bad as the flares have been, I managed to make my way through all of them. Some were easier than others to get through.

    I still worry about a really bad flare coming on, however, that has not happened. This disease, these flares that scared me so, have proven to be manageable most of the time, and something I can control through proper meds, and a lifestyle that does not do anything to aggravate the situation.

    I know you are afraid, I am too sometimes still, but know that what you fear can be dealt with, and on most days, can be beaten. The members here who have 5, 10, 20 or more years of successfully living with Lupus are the proof that it can be done.

    Please know that there are many good reasons to have hope, and that you are not alone.

    Rob

    P.S. You ARE NOT defeated. The fact that you are alive, means that Lupus is the one who has been defeated.
    Last edited by rob; 12-27-2009 at 08:44 PM.

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