I know it can be so very scary when you are newly diagnosed and you have little information about your disease. Lupus affects each of us differently and its symptoms appear differently for each of us. There is a lot to learn about this disease and, especially, how it affects you.
Lupus is a disease that can affect every part of our bodies; our tissues, our muscles, our nervous system, our organs, our blood vessels, and our bones. It is a chronic disease, meaning that it lasts for years and years and, often, never goes away. Basically, something goes wrong with our immune system, which is the part of the body that fights off viruses, bacteria, and germs ("foreign invaders," like the flu). Normally our immune system produces proteins called antibodies that protect our body from these invaders. Autoimmune means your immune system cannot tell the difference between these foreign invaders and your body’s healthy tissues ("auto" means "self") and creates autoantibodies that attack and destroy our healthy tissue. These autoantibodies cause inflammation, pain, and damage in many parts of our body.
Since the exact cause of Lupus is not known, there is no cure for the disease at present. At best, our medications and treatments are geared towards managing symptoms and reversing and/or preventing damage.
As Magistramarla suggested, begin by reading some of the posts here on these forums. You can start by reading the "Sticky" posts. These are usually filled with information and may answer some of your questions immediately. However, if you have any anxiety, questions, fears, or just need to know that you are not alone, we are always here to help you.
Some basic things that might help you a bit is:
1) We all suffer with the flare-ups (called relapse and remission syndrome). There are times when our symptoms are not severe and we can function somewhat normally..then there are times when they become severe and we can barely get out of our beds. That is the nature of the disease
2) We are all very sensitive to sunlight and fluorescent lighting. It is important that we avoid both as much as possible. Many of us wear sunscreen 365 days per year and in the summer, we are covered in protective clothing from head to toe. Exposure to sunlight and/or fluorescent lighting can cause skin rashes, joint pain, nausea, and a general worsening of all of our symptoms.
3) Our fatigue is downright debilitating. The best description I've ever heard was provided by our Moderator, Rob. He described it as feeling like we are lying under a lead blanket. Due to this, it is imperative that we allow ourselves ample time for recuperative rest. Never push yourself to do anything, this will only cause complications.
4) However, it is equally important that we get some type of exercise regularly. Preferably a form of non-jarring exercise (like yoga, swimming, pilates, etc.)
Please know that you are not alone and that we are here to help you as much as you can. Do read the member's posts and "sticky" posts here. After you've done that, we are here to answer any questions that you may have.
Peace and Blessings
Look For The Good and Praise It!