Lupus Cerebritis/CNS Lupus/Symptoms..Etc.
Through all my research based on my symptoms I am thinking I could have CNS involvement which is not treated with just plaquenil and nsaids but my dr is not believing that I do. I am wondering if anyone has any imput on my symptoms I have listed below and if anyone with CNS involvement has similar symptoms and what has been used to treat it.
-Had 2 seizures at age 15(were told I had epilepsy but years later found out I had lupus..any relation?..still have abnormal EEG's and nystagmus)
-Headaches(migraines-pressure with & without pain and sometimes occurs with stiffness in my neck and tremendous pressure in my ears and/or eyes and temples)
-Brain fog(Trouble concentrating & with memory, spaciness/dreamlike state..varies from sligtly to very bad)
-Peripheral neuropathy(burning pain/tingling..started in legs and is now in arms, back and face)
-Twitching(can be anywhere but lately is in my left eyelid on and off)
-Orthostatic Hypotension(Ive read it can occur with peripheral neuropathy but im not sure what causes mine)
-Palpitations but other than a systolic heart murmur have been told when I feel chest pain or pressure my heart rhythm is normal(was thinking along the lines of autonomic nervous system..also possible with the hypotension as well)
-Extreme fatigue(I know it can be a factor for all lupies but I can sleep 12 hours and 4 hours later be ready to go back to sleep.)
-Ringing in the ears(constant tonal since last year but also pulsatile at times especially with headaches and when laying down)
*LadyBug*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011 Secondary Adrenal Insufficiency Dx: 2012--Current Meds:
Hydrocortisone 10mg A.M. & 10mg 4P.M.
Protonix 40mg 1x/day
Flonase 50mcg 2 sprays each 1x/day
Wanna know my story, just ask!