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Thread: endometreosis

  1. #1
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    Default endometreosis

    Sorry if the spelling is wrong. Can anybody give me and answer to this i was told that this is and autoimmune or connective tissue diease and in 94 i had a complete hysterectomy and oopherectomy becaus eof this and maybe my lupus and myositis started then. Bonita

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    Bonita-
    I have no idea if endometriosis triggers SLE, but I had an endometrial ablation in 1993.

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    Bonita,
    I was just doing some research on endometriosis for my daughter and saw that it is classified as an inflammatory disease and is thus considered an AI issue.
    My youngest daughter is 23. She had the surgery for it twice before she was married. She is now 8 months pregnant, and is concerned about the pain she has been having, and today she started having some bleeding. She went to the hospital, but since she isn't dilated, the doc on call dismissed it. I looked up endometriosis & pregnancy and found that the adhesions from the surgery are probably being stretched, causing her pain, and that bleeding and early labor is common with women with the disease.
    On another thread, we were recently discussing that several of us have noticed that we seem to have passed a variety of AI issues on to our kids. I know that my kids have several. Now I can chalk up another one - Meg's endometriosis.
    Marla

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    Thank you for this info and when i go to the rhuemy on the 23 i am going to ask about this. I never had trouble with any of my pregnanicies but had many dncs and heavy periods and cramps till i had my hysterectomy in 94 and the doctor said that the endo was so severe it was all over my organs. Bonita

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    bonita my daughter sarah had 2 ovarian cysts and was diagnosed with endiometriosis at 18 it was on a lot of her internal organs including her bladder they had to cut it open to get it out she is now on birth control as her gyno only wants her to have 2 menstral cycles a year as this slows it down but she has been told it would be better to have children before the age of 27. after hearing what marla researched about it being associated AI i now feel that it is also something i probably passed on to my daughter. my daughter also had blooodtest recently and she has abnormal ana results she now has been referred to rhuemi it seems AI is associated to alot of things i had multiple miscarriages and one stillbirth and 3 children all were born early the first at 36 weeks the second 35 weeks and the last at 31 weeks she now 14 but still has not got her first menstrual cycle i am now worried that she is heading the same way as her sister.

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    Kim,
    That is just what my two youngest girls have been through. Luckily, they've both gotten pregnant in their early 20's. My 30 year old daughter just can't seem to manage to have a second child, and the oldest girl has never found "Mr. Right" yet. She is a career girl with a PHD.
    I'm now really after Meg to take care of herself and to try to get through as many weeks as possible. Pre-eclampsia is a danger for pregnant women who have had endometriosis. I used to work for a midwife, so I'm telling Meg every trick I learned from her. I'm having her to drink raspberry leaf tea every day, to increase her protein intake with protein shakes and to avoid salt like the plague. Tyler has been given the job of keeping her very calm and resting with her feet up as much as possible, balanced with gentle exercise.
    I really want her to make it to 38 weeks, if possible. That's 4 weeks from now, so maybe we'll have a Christmas baby instead of a New Year's baby!
    Worried Grandma,
    Marla

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    marla i am sorry you are so worried about your daughter i hope everything goes alright and she gets to 38 weeks bed rest may be the only thing she can do my first to children i had high bloodpressure and needed to be induced my last child my water broke at 30 weeks and they gave me steriods to mature her lungs i was just lucky she was a big baby and weighed 5lb 13 i will be thinking of both of you , i will inform my daughter of the links so she can make rheumi aware i think they will have to do more tests as i want her to be safe and informed . hopefully you will have a wonderful addition by christmas 38 weeks some doctors consider to be full term and this would be a great result. we mothers constantly worry about our kids and grandchildren is something i am looking forward to in the future. please keep me informed on hows she is going. even though i am not religious person you will be in my heart. hugs kim l

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    hi bonita, since my diagnosis, my original family dr. looked back on my medical records, and has decided that i had lupus in the 80's. I had a hysterectomy at age of 30 because of endometriosis. Now all of the pieces fit, but it seems a little late to me.........Marla, my congratulations to you and your christmas present, i know you are worried, but these little ones have a way of getting it right and being born just like they are supposed to.
    Phyllis

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    Kim,
    I know that 38 weeks is considered full term. I had every one of mine at 38 weeks exactly - at home, no problems. Every time the midwife would come up with a due date, I would give her one two weeks earlier, and I was right every time!
    Thanks for the good vibe - I appreciate it.

    Phyllis,
    I know that babies always seem to do what is right for them - I used to be a midwife's assistant. I'm just hoping that Meg hangs in there, and that she manages to avoid a C-section. Those OBs are just too cut-happy for my liking.
    I'm an old earth-mother type. I had home births, assisted my midwife with 35 deliveries, and was a La Leche League Leader for 13 years. One son-in-law called me an aging hippie, and I told him that I resemble that remark!
    Hugs
    Grandma Marla

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    hi grandma marla, I understand resembling the aging hippie remark....except, i am often accused of never "aging"out of the hippie mode. What a special person you are...so many lucky moms that you have helped. My daughter had an oola (sp) - i am sure i butchered that spelling - and she made my daughter so comfortable. I will always be grateful for her.
    Phyllis

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