Hi Leeann, it sounds like your doctors have got you into the revolving door. I told my rheumy that I felt like that was what was happening to me. So he promptly sent me to another specialist and back into that revolving door.
Getting on disability is really hard. They make sure of that. The only advice I can give is to copy every form you fill out and keep them on file. You will fill out the same papers over and over. I see you mention probable RA/lupus. I had to have a definite diagnosis before I could be taken seriously. You need a doctor to go to bat for you, one who knows how really sick you are and is willing to take the time to fill out the papers properly. Oh, and the more visits you make to the doctor, the better. It shows you are sick and constantly seeking help.
Hope things get easier for you. Do you have one doctor that really believes you and will take the time to help you out? It can be any kind of doctor, primary care or specialist. Filling out all the paperwork for disability is a lot of work for a doctor and they are not compensated well for their time.
Hope things start getting easier for you.