It is very hard when you are first diagnosed. You are learning how to maintain the disease along with accepting that this is now in your life. I used to lay in bed and think about the pain I was in and wonder how my own body can do this to itself. I told my doctor about all of this and she suggested that I go talk to someone. I found a therapist who actually specialized in helping individuals deal with life changing diseases. I went a saw her every week for over a year. She taught me how to deal with everything in a positive way and not to get lost in the depression our disease can cause. In the end I had accepted what was happening to my bosy and I knew that I was still in control. I understood that I deserved to be loved and to be very happy even when I had a disease that would affect my life and my loved ones lives forever. She really saved me and helped me get through the first few years. You may want to look into going to see someone who help you get through this. It does get easier and you will get used to it. You will find a way to deal with this in your own time. Just promise me you won't hold all you thoughts and feelings in. Tell us about everything you are feeling. Tell us when you feel alone and you will realize that someone else is feeling that at the exact moment as you...........that really helps with the isolated and lonely feelings. You will get through all of this and we are all here to help you every step of the way Keep your chin up and keep a smile on your face!!!!!!! Tonight I am sending you healing thoughts and lots of gentle hugs
As I grow to understand life less and less,
I learn to love it more and more.
Age 29, Lupus for last 7 years
Medications: Methotrexate, Lyrica, Celebrex, Flexeril, Theophylline, Bactrim, Xopenex, Lisinopril, Ultram