Colorado member looking for penpal
I just recently found this site as I've had UCTD for several years but just recently was diagnosed with CNS vasculitis and am undergoing cytoxan therapy.
I knew my symptoms could change and had previously been on methotrexate and Plaquenil to treat the UCTD. I started having seizures in April and after many tests found out it's definitely lupus of the brain. I just took a new job and am having to fly back and forth from Colo Spgs to Phoenix for training. It's been really tough to deal with the fatigue and horrendous headaches and learn a new job.
I would appreciate any support or suggestions that anyone has! I don't know hardly anyone with this disease and am desperately trying to learn a new job, lose weight with Atkins (lost 80 lbs in the last 1 1/2 yrs, and deal with lupus.