Amanda, thanks for the suggestion about soy. Unfortunately, soy is a major trigger for my asthma, so I can't have any beyond a small bit of soy sauce in marinades.
I'm amazed at how many of us who have lupus/AI also have lactose intolerance. And how it hits suddenly, as you said, Saysusie. There must be a connection then. And Sandy, interesting point about how we really should be lactose intolerant scientifically.
I saw my rheumy yesterday, and it was a good appointment. She agreed with me on the Plaquenil, saying that I need to listen to my body, and if I feel better on it, she has no problem with me staying on it as long as I keep up my eye exams every 3 months, which I do. She was fine about the Evoxac too, saying that unfortunately, some people just can't handle it, and I must be one of those people.
She too is lactose intolerant, and just said to get the Lactaid tablets, and take them with a glass of milk. She told me a really funny story about her experience with this ...she was stopped by a police officer for speeding when she needed DESPERATELY to get to a restroom. He could tell she was honest by the smell in the car, and he ended up escorting her (lights, sirens, and all!) to the nearest gas station! So this week I'm off to get Lactaid and start experimenting. I think I'm having withdrawls from milk - V8 and orange juice weren't quite the same this morning!
Lupus, you have no chance!
Love and hugs,
(mom to my little Chihuahua, Brandi)
Diagnosed with SLE, Sjogren's, Reynaud's, Celiac, and arthritis November 2006.