Results 1 to 5 of 5

Thread: in hospital with gbs

  1. #1
    Join Date
    Sep 2009
    Posts
    67
    Thanks
    0
    Thanked 0 Times in 0 Posts

    Default in hospital with gbs

    I am in the hospital with another round of guillian barre syndrome. they say I have CIDP. my immune system is attacking the myelon sheath around my peripheral nervous system casueing extreme weakness and paralysis. I get plasma exchange today. its kind of like dialasis. they pull my blood out and put it in center fudge to pull the bad plasma out and put new albumin in. has anyone else out there has gbs. I know it is some how realated to lupus cuz its onset was extreme arthritis. that extreme kidney infection caused this.

  2. #2
    rob is offline Super Moderator Super ModeratorEmperor of the World
    Join Date
    Feb 2008
    Posts
    3,681
    Thanks
    426
    Thanked 1,105 Times in 628 Posts

    Default

    Hi Ricketyrose,

    I have significant deterioration of myelin due to Multiple Sclerosis. It's painful, and causes all sorts of problems for me. Numbness, weakness, shooting pain, it sucks, and for me much of the damage is permanent. I have been getting IV Copaxone treatment that works to a certain extent.

    How long do you have to be in the hospital? Do you have family or a friend to keep you company?

    I don't have GBS, but I understand the problems you are having, as they are very much like what I've been dealing with. I hope this plasma exchange works. Just rest, and get better.

    Rob

  3. #3
    Join Date
    Mar 2009
    Location
    Dallas, Tx
    Posts
    1,862
    Thanks
    145
    Thanked 412 Times in 338 Posts

    Default

    I am sorry, that you have to be in the hospital, but I hope the plasma exchange, gives you the result you need, to feel better. Take care and get well soon.

    Debbie

  4. #4
    Join Date
    Jan 2009
    Location
    Sylvania,Ohio
    Posts
    1,409
    Thanks
    79
    Thanked 70 Times in 58 Posts

    Default

    Oh my goodness, you are in my HEART! POOR THING! GOOD LUCK and im THINKING OF YOU!!!!!!!
    We Live in a MORTAL, FRAIL, IMPERFECT world in which the word "FAIR" doesn't always apply.Make EVERY MOMENT COUNT with the ones you LOVE because it can end in the blink of an eye. Love, Jeannette

  5. #5
    Join Date
    May 2009
    Location
    NJ
    Posts
    305
    Thanks
    2
    Thanked 17 Times in 15 Posts

    Default

    Rob, my brother-in-law has very bad MS and is getting ready to start a clinical trial..I'll keep you posted, he is so desperate to get any help, or slow the progression.
    Andrea

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •