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Thread: New to site and wondering if anyone else this sick

  1. #21
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    hi welcome to the site i was diagnosed ayear and a half ago i spent 5 months in wheelchair last year needing help to walk i have lupus, angina,highbloodpressure arthritis andthyroid problems, depression, i have more bad days than good i am on walking stick in process of buying walking frame and will eventually need one of those motorised mobility scooters or wheel chair i am on mexotrexate plaquenil, prednislone, lipitor thyroxine, somac, cartia aspirin, and cardizem, and valium, and endone for pain as well as zostriz cream for burning and electric shocks in arms and legs i also take maxolon for nausea animmodium for dioreah i also have colieacs disease and double and blurred vision so i need prisms on my glasses to see i spend most of my time confined to house . you will find you get a lot of support from the people here they have made a difference in my life and i am greatful to have people to talk to welcome again and merry christmas hugs kim l from australia

  2. #22
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    Quote Originally Posted by nasalady View Post
    Dear Jeanette,

    You and I do have some things in common, I think. And I'm so sorry to hear what you've been going through!

    I'm brand new to this site. I guess this is my introduction!

    I don't have a diagnosis of lupus yet.....just Hashimoto's thyroiditis, asthma, psoriasis, autoimmune hepatitis, celiac disease, Sjogren's Syndrome, Raynaud's syndrome, rheumatoid arthritis, and fibromyalgia.

    I'm in a wheelchair but can walk or stand for short periods (few minutes). I'm still working full-time plus a part-time job. But I don't know how long I can keep it up! I'm so stressed out right now I don't know what to do anymore! I too need to find someone who understands what it's like to have SO MANY %$#&@* autoimmune diseases that you feel like a freak who should be in a medical research study!

    I just had a blood test positive for ANAChoice screen and anti-double-stranded DNA antibodies (but my complement C3 was high), plus I've been getting the malar rash and photosensitivity rash too. I've also had urinary problems lately (incontinence, blood in urine, frequent infections).

    Two of my aunts died from complications of lupus. One of my adult daughters has lupus too.

    Now I think I have lupus, and it scares me....

    JoAnn
    JoAnn,

    Thank you for your response, and I am so sorry to hear that you are going through all of this and left working 2 jobs on top of it!

    Why is it that your Doctor feels that you don't fit into the diagnosis for "Lupus"? That doesn't make any sense to me here. Have you thought about going to another specialist to get their opinion, as that would be my advice for you?!

    Good luck, and please let me know what you have found out recently.

    God Bless,

    Jeanette
    "Courage doesn't always roar, sometimes courage is the little voice at the end of the day that says...I'll try again tomorrow. -Mary Anne Radmacher-Henshey

  3. #23
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    Default Social Security and Depression

    Maria,

    Please hire an Attorney to help you to win your Social Security case! They will charge you a percentage of what they recover, but it is money you never received, so you won't even miss it! You will be able to get it back to the day you became disabled, and well as all children under 18 at the time would have also been entitled to a check that would have gone to you. It is VERY rare for an individual to win their own case, and may even take the "Lawyer" a couple times themselves, but like I said, they only charge if they win, and then just a percentage of what they re-coop for you and your Family. I will hope and pray that you use this option, so that you can get rid of a great deal of your stress and depression. I feel terrible that I haven't been on for so long to respond to your letter, please forgive me as I have been very sick and extremely stressed out myself!

    Also, please go see your Doctor and let him/her know how much pain you are having and how very depressed and stressed you are. Hopefully this way they can properly medicate you so that you don't feel as hopeless as it sounds as if you do. This is a terrible feeling we get when we feel there is nothing else to do to help ourselves, but we must remember that there is "always" something more! Please E-Mail me anytime, and I will be glad to talk to you, AND "don't forget" there is so much more help out there for you!

    Take Care and feel Better. God Bless you,

    Jeanette
    "Courage doesn't always roar, sometimes courage is the little voice at the end of the day that says...I'll try again tomorrow. -Mary Anne Radmacher-Henshey

  4. #24
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    Quote Originally Posted by sophie View Post
    Hello my name is Sophie, I am newly diagnosed with Lupus. I beleive like you I have had it longer. Some days I don't think I can make it another day. Beleive it or not I was just saying to myself this morning if I could find 1 person this sick I would make it through this.I would love to chat with you it is sort of nice to speak with someone that feels as bad as you do. I pray you have more good days than bad. My e-mail is dianemuns@yahoo.com, or facebook at diane muns
    Sophie,
    Thank you so much for your response, and to this site for E-mailing it to me! I sent you an E-Mail to the address you had listed, and hope to hear back from you soon.
    "Courage doesn't always roar, sometimes courage is the little voice at the end of the day that says...I'll try again tomorrow. -Mary Anne Radmacher-Henshey

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