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Thread: It's been a crazy year

  1. #1
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    Default It's been a crazy year

    Hey everyone it's been awhile since I have posted anything. It's been a crazy year. I went on short term disability in March. I was hoping that some rest would help and I'd get back to work in a week or two. However it didnt. My doctor advised my company that my body couldn't handle the stress of my job. Even though it wasn't physically demanding just getting out of bed was almost impossible most days. So I tried to get switched to a home office position. I had been at the company for over 7 years and was a very loyal and dedicated employee. I loved my job. Well after waiting til may for an answer. I got an email declining my request and saying if I didn't return to work the next day I would be fired. I pretty much broke down. As much as I wanted to work my body wouldn't allow it. So I was fired. I had run out of FMLA so didn't have anything else holding my job. I know they had to fill the position but they wouldn't work with me at all. And when a couple days later when I went to get my things, I wasn't even allowed in the building. Almost 8 years of my life giving my all and I couldn't say good bye. Then the stress began. My insurance was going to end at the end of may. I was lucky that I paid into long term disability so I was still getting paid. I went on the open market and got good insurance but it didn't start until july. So a month without insurance and having lupus is very stressful. I unfortunately ended up with a bad infection on my arm. Luckily my primary doctor is wonderful and discounted my visit and helped me find a pharmacy that had the cheapest antibiotics, it was still $86 but it could have been worse. So after talking with my family I decided applying for Social Security disability was what I had to do. I didn't want to but I wasn't getting any better. So I'm still in the middle of that process which is a headache in its self. I'm only 28 and anytime I tell someone that I'm disabled I get this look like I'm crazy or lazy and just want to leech off the system. What they on know that everyday I cry that lupus has taken so much from me. My social life is nonexistent, I can hardly walk long distance or even short ones for that matter, it took my ability to ever bare a child, it has taken everything and just because I don't look sick they think they have the right to tell me"oh just that this vitimin or drink this tea because my sisters friends aunts cousin had lupus and this cured it". It's ridiculous and I'm sure you all have heard some thing similar. So now I just waiting on an answer for my disability case. I did have a spinal cord stimulator put in a few weeks ago to help with the leg nerve pain. It does help some. I'm able to take fewer pain pills during the day so it's easier to do things. However there a lead is an issue with the device so I might have to get another surgery to fix it. So it's been a crazy year for me. Sorry for just a negative post but I always feel like I am a drag on my family, even though they tell me all the time I'm not. It's just nice talking to people who truly understand. I hope everyone is doing well. I will try to post a little more often.

  2. #2
    Saysusie's Avatar
    Saysusie is offline Super Moderator Super ModeratorEmperor of the Universe
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    Nov 2001
    Victorville, California
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    I am so sorry to hear that you've been through so much this year. Especially about your job being unwilling to accommodate you. Did you know that Lupus falls under the Americans With Disabilities Act? This act states that your job must provide accommodations if you are found to be disabled.
    " The ADA requires employers to provide reasonable accommodations for employees who have a disability, including lupus, so they can continue to perform their job." You can call the ADA and talk with a job accommodation specialist.
    Another source is The Job Accommodation Network (JAN) at is a free service of the U.S. Department of Laborís Office of Disability Employment Policy. A JAN consultant can talk with you about your limitations and help you brainstorm accommodations that may work for you. The consultant can also coach you on how to talk with your employer about your disability. I am not sure if this will help you retroactively, but it might be worth it to find out.
    I do hope that you and your doctor are able to get you approved for disability. Prepare yourself for the fact that, quite often, they arbitrarily deny initial requests in the hopes that you will not pursue the matter further. It is very unfair, but they've done it to many people.
    I'm glad to hear that your primary is working with you and doing what she/he can to help you. I hope that you get appropriate treatment very soon, that your disability is approved, and that you can reduce your stress in order to take care of yourself. I wish you the very best.

    Peace and Blessings
    Look For The Good and Praise It!

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